An unofficial poll! Please read!

13 years 11 months ago #31386 by LoriK
Replied by LoriK on topic An unofficial poll! Please read!
After each of my 2 TURBTs I had a catheter in for 4 -5 days. No problems either time. I was given a bladder relaxer for spasms but they weren't bad enough to bother taking meds. Started BCG today. Went fine - was much easier than I thought. FYI - I am T1-G3. Best of luck to you. LORI

Age: 52
DX on 2.18.10
T1, G3

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13 years 11 months ago #31378 by karenb
Replied by karenb on topic An unofficial poll! Please read!
I've had 2 TURBs. No problems either time. Had cath in for 3 days following each one. No problems after cath removal either. Just completed my 6 wk BCG inductions. No side effects from treatments either. Go for followup cysto May 14. Was given prescriptions for spasms and burning but never needed them.

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13 years 11 months ago - 13 years 11 months ago #31374 by Alan
Replied by Alan on topic An unofficial poll! Please read!
I had 2 TURBS,the second was done as like most of us to be sure margins were there to rule in or rule out muscle involvement. No real problems other than passing blood that was colored blue for 1/2 day from his procedure (dye was to help see any potential re-seeding and if he got all of it).

The only 2 cents to add is my tumor was tiny (.5 CM) so your size might have caused more burning/cutting and the number of places a surgeon has to touch has to be a big variable. As most would say on this board, let your URO know what is going on. In the past 2 years my cystos have caused 2 UTI's. The first one he was a little skeptical on my guessing (symptoms weren't prevelant) but, he did what he should do-the simple urine test. Now, the last couple of cystos he gives me antibiotics as a preventive move.

I write this only to say "who knows what is normal" as everyone is different. Keep posting, someone will be watching and give you some great advice when needed.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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13 years 11 months ago #31372 by dukel
Replied by dukel on topic An unofficial poll! Please read!
I had three turb's, each time either with cath or without cath
i had all the symptoms that you speak of. I believe they lasted
about two weeks and gradually stopped. I didn't have any medications. I just assumed it was normal.
Nanic, I do want to say take the bcg treatments very seriously.
For me at least they were a last chance before having neo-bladder. I wish they would have worked, but they did not. I am
now four months post neo surgery and doing very well.
Wishing both you and your husband the best.
Duke

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13 years 11 months ago - 13 years 11 months ago #31370 by Humpy
Replied by Humpy on topic An unofficial poll! Please read!
I had two TURB's. I was "tore up" for 3-4 weeks.
I swore they used a cheese grader on me. I passed tissue, and blood for weeks. I had a catherter in for 3-4 days for each. Minor incontinence after removal both times.
I was very surprised how much more invasive it was than a scope.
Now that I have a Neobladder, I hope I NEVER have to have another TURB.
Between TURB's, and the stories of BCG, I am glad I chose a Neobladder.
Now I have to cath every other day. Maybe one of these days, I can quit sticking things up there.

Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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13 years 11 months ago #31369 by mmc
Replied by mmc on topic An unofficial poll! Please read!
I had a couple TURBs.

First one, went home with catheter and it was in a couple of days. Had some pain but treated with off the shelf medication.
No change to urgency frequency.

Second TURB I had along with a TUIP (Trans Urethral Incision of the Prostate), catheter came out in hospital a few hours after the procedure and went home. Minor change in frequency, urgency. In my case, the reason for the TUIP was improve urgency/frequency due to enlarged prostate.

No spasms either time.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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