Life between Cysto\'s

Alan, Yes my dad had Bladder Cancer. He passed 3 years ago. I believe our local Uro was more concerned with making money than saving lives. His cancer eventually went through the bladder wall, and that was it for him. I still feel to this day, If he had sought a second opinion, he would still be here.

When I was diagnosed, the the local Uro wanted to use BCG as well. I immediately sought a second opinion at U of M Ann Arbor, MI.
They told me that the kind of cancer I had was not even receptive to BCG. It would seem to me, that my local Uro should have known that as well. So I chose the Neobladder. So that is why I said that if I stuck with my local Uro, I would currently be very sick or very dead. But now I am full of life, thanks to what I learned from my dad's passing.

Alan, I think I am even dumber. As I have stated before, I am sooooo glad I have a NeoBladder. When my bladder was removed, so was the cancer. I never have to worry about it again. I am coming up on eight months, and am feeling great. I really feel if i had choosen the BCG route, I would be one, very sick, or two, very dead. I watched my father go through this misery for almost three years before he passed.

I think, no...I'm sure that this group has to be the best counselors around. I have found that I am always better after getting online and am sure to get a few laughs now and then too.

Role models each and every one of you!!!


Thanks for the great support.
Vi

Hi VI

I think you will find once you get a few clear cystos behind you that it will be easier to deal with this cancer.
I was a worry wart myself, actually until I found this support group. I now have 8 clear cystos behind me and I really don't worry until the night before my cysto. I am always 1st cysto in the morning at 7:30 am, so I can be relieved of the thoughts of a recurrence.
Myself I found dealing with maintenance BCG the hardest on my mind, knowing the side effects I would be encountering really would play havoc with my thoughts.
You are fortunate to be involved with a support group early in your journey.
I wish you all the best,
Jack