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Life between Cysto\'s

9 years 6 months ago - 9 years 6 months ago #29534 by Humpy
Alan, Yes my dad had Bladder Cancer. He passed 3 years ago. I believe our local Uro was more concerned with making money than saving lives. His cancer eventually went through the bladder wall, and that was it for him. I still feel to this day, If he had sought a second opinion, he would still be here.

When I was diagnosed, the the local Uro wanted to use BCG as well. I immediately sought a second opinion at U of M Ann Arbor, MI.
They told me that the kind of cancer I had was not even receptive to BCG. It would seem to me, that my local Uro should have known that as well. So I chose the Neobladder. So that is why I said that if I stuck with my local Uro, I would currently be very sick or very dead. But now I am full of life, thanks to what I learned from my dad's passing.

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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9 years 6 months ago #29532 by Alan
Jim Humphrey wrote:

Alan, I think I am even dumber. As I have stated before, I am sooooo glad I have a NeoBladder. When my bladder was removed, so was the cancer. I never have to worry about it again. I am coming up on eight months, and am feeling great. I really feel if i had choosen the BCG route, I would be one, very sick, or two, very dead. I watched my father go through this misery for almost three years before he passed.


Jim,
Just curious. Did your Dad have BC? I had an uncle with it many years ago. I believe there is an unproven predispostion for many people on BC.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 6 months ago #29517 by Humpy
Alan, I think I am even dumber. As I have stated before, I am sooooo glad I have a NeoBladder. When my bladder was removed, so was the cancer. I never have to worry about it again. I am coming up on eight months, and am feeling great. I really feel if i had choosen the BCG route, I would be one, very sick, or two, very dead. I watched my father go through this misery for almost three years before he passed.

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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9 years 6 months ago #29483 by Alan
mmc wrote:

I usually just didn't think about it and went about my living life normally. I think there were a couple of times the day of the cysto that I'd worry.

I'm not normal though.... (my wife tells me this all of the time).

My philosophy is that I don't want to waste any time worrying about things. If I worry and whatever it is I'm worried about happens, then worrying didn't do any good. If I worry and it doesn't happen, I've wasted part of my life worrying.

In any case, even people at work can't understand how I do this. When I had the cancer diagnosis, they couldn't figure out how I just went on as usual and even joked about the cancer. They said they'd be worried sick. I certainly understand their point but it's just not for me.

I enjoy being fat, dumb, and happy. It's worked so far and I'm sticking with the plan. :)

Mike



LOL! Mike. I agree and handle it about the same as your good summary. That puts me even dumber! LOL again at myself. I am at peace at whatever comes at me with the Man Upstairs, also.

Wishing all clean cystos. I am up for a 6 monther in 5b weeks.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 6 months ago #29466 by vgau
I think, no...I'm sure that this group has to be the best counselors around. I have found that I am always better after getting online and am sure to get a few laughs now and then too.

Role models each and every one of you!!!


Thanks for the great support.
Vi

Dx 10/5 Non Invasive Papillary

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9 years 6 months ago #29457 by Moonerj
Hi VI

I think you will find once you get a few clear cystos behind you that it will be easier to deal with this cancer.
I was a worry wart myself, actually until I found this support group. I now have 8 clear cystos behind me and I really don't worry until the night before my cysto. I am always 1st cysto in the morning at 7:30 am, so I can be relieved of the thoughts of a recurrence.
Myself I found dealing with maintenance BCG the hardest on my mind, knowing the side effects I would be encountering really would play havoc with my thoughts.
You are fortunate to be involved with a support group early in your journey.
I wish you all the best,
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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