Worst Pain of 30+ BCG Treatments

14 years 4 months ago - 14 years 4 months ago #28870 by TheWifeAgain
Worst Pain of 30+ BCG Treatments was created by TheWifeAgain
Hi Everyone

I don't post a lot but I am a weekly reader and follow everyone's ups and downs. You all are the best.

My husband had his 3 of 3 BCG treatment on Friday. He is hurting really bad. He has a band of pain around his midsection and a pain in his back. I have been giving him Ibuprophen around the clock and also Ditropan and Pyridium. No relief.

The first of this last round of BCG was bad but not this bad. I asked the doc at the 2nd of 3 for a refill of the Ditro and Pyridium as hubby said it helped after the 1st of 3. Before this round of BCG he had not needed either drug except occasionally immediately after the instillation.

He has been unable to sleep and does not look good. He is pale and shaky but has no fever. I wanted to call the doc but he said "No". He is not running a fever. The only time I remember him in this much pain was after a TURBT and he developed hydronephrosis from inflamation due to the scarping near the entry way of one of his ureters.

More background - he finally made it three months tumor free and this was a BCG maintenance. He has never had anything but a mild discomfort after BCG so I am a little concerned. This is the first time in 2 1/2 - 3 year Bladder Cancer journey he has been tumor free at a cysto.

Thanks for letting me ramble. If anyone who has had a similar experience could share I would appreciate it.

TheWife

Age 53 Currently
Bladder Cancer Diagnosis October 2006 T1G3
2011 Finally made it 6 month between Cystos
8/22/2011 Cysto in the OR
(BCG and BCG Maintenance over the years)
Graduated to yearly Cystos
Tumor found at first one year Cysto - TURBT 4/26/2013
Kidney pain - CT scan 5/1/2013

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