Glad to hear that you are getting out and about. I had the same control issue with getting up out of a chair. No matter how slow or carefull I was going from sitting to standing, I always sprung a leak. That problem slowly improved over the period of about 3 or 4 weeks.
DX Jan 2006 - T1B G3
RC - Neobladder June 2006
Rudy, I am glad to hear you are out. Life WILL return to a NEW normalcy.
I still have the same loss of control when I strain to get up or work out. But I have long since lost the embarassment of it. I am just happpy that I have so few effects from the new high tech plumbing job.
Keep up the good work!
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.
08/08/08...RC neo bladder
New Man! [/size]
Just a quick up-date. Today was four weeks out + 1 day from the operation. I was feeling good and actually went out to lunch with my wife. It was nice to see things returning to normal. My energy levels have increased considerably in just the past 3 days and I am feeling stronger all the time. Still trying to get the feel for the bladder though. I have some control but it is only sporatic like leaning up in a chair to get up and all of sudden oohps. Oh well I am sure that will improve as well.
65- 5 yr w/cancer BCG, Thiotepa, T3 CIS, RC-Neo-Bl
Thank you received: 0
10 years 1 month ago - 10 years 1 month ago#28974by rudyskier
So I am 4 weeks out. Had my follow-up visit with surgeon 2 days ago they took some scans of the bladder injecting contrast into the bladder and showed no leakage. I had all tubes and stents removed (Whew that was an uncomfortable experience) It seems the stents did not want to come along willingly with the foley. Once out I had had a few more minutes of pain and then none.
All the pathology came back negative, cancer was only present as CIS inside bladder wall and had NOT even made it to muscle. That puts me in the 95-98% survival area. I'll take that for sure it only confirms that I made the right decision for me.
As for the reflux! It's all gone now. I don't take anything for it or for indigestion. My apetite has been slowly returning. I really enjoyed turkey, gravy, mashed potatoes and some stuffing on Thanksgiving.
Right now my biggest issue is to try and get the feel for controlling my new bladder. Since it's only been 2 days that I have had a chance to actually use it the jury is still out on that.
One more thing, I seem to have some wild fluctuations in day to day energy levels. The other day I could hardly get up from the chair and felt sleepy all the time. Not sure if this is related to getting all the drugs out of the system, trauma, or just trying to eat enough to get some more energy. I'm sure this will improve over time.