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had my ureterscopy

9 years 1 month ago #28738 by wsilberstein
Don't know many details David, but apparently Zack had a recurrence in the form of metastases and didn't respond to treatment.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 1 month ago #28733 by ddoyle
Warren, I didn't know about Zack: what happened?

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9 years 1 month ago #28732 by suzy wong
hi i will ask about fish test at mt next appointment
i have a retrograde phylogram every 6 months
my last procedure they went right up into my kidney and checked that out to
i ended up with a catheter in both the bladder and the kidney over night
the pain was terrible but uro said it was normal my kidney was having the spasm reacting to the catheter he said it was known as kidney colic they sedated me for 4 hours when i woke the pain was gone
honestly i thought i was in the end stages of childbirth

i was laughing looking back when i woke from the procedure a nurse did ask me if i needed any pain killers but i was fine until about an hour later then wam bam lol i needed pain releif BIG STYLE
i was given whatever thru a drip and it worked a treat
I WILL KNOW BETTER NEXT TIME
other than that ordeal i am doing good fingers xst
thanks to mytomycin
and thanks to all of you my bladdercancer mates xxx

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9 years 1 month ago #28731 by Julie
I saw that Rosemary was online yesterday so I think she is reading some of he forum posts. We don't hear much from her. You could write her private message.
Julie

Volunteer Coordinator
ABLSC

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9 years 1 month ago #28728 by wsilberstein
I haven't heard anything about Rosemary... and you know we lost Zack.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 1 month ago #28725 by ddoyle
Hi Warren, good to see you are still there (as long as you are doing well healthwise, that is). I've been clear (except for the positive FISH tests and some residual inflammation and displasia) for going on two years. I appreciate your answering Suzy's question about FISH. I am guessing that my Uro will recommend the Retrograde Pylogram next, rather than another TURB since the last two or three TURB's didn't yield any positive biopsy results. Have you heard anything from Rosemary lately?

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