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Urethral Stricture

9 years 10 months ago #29010 by Cynthia
I have been following your progress on FB and am so happy you are mostly to the other side of what has been a hard time for you. For your information this thread has had over 4700 hits. Because of the length of it I am going to lock it I hope you don't mind starting an update thread for more posts on this subject.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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9 years 10 months ago #29003 by wsilberstein
I'm on my way to feeling better, but it's been a long haul. I've been back to work. Actually I had gone back one week after the surgery with the catheter still in, but the infection knocked me on my ass, and I was out for the full 9 days of fever. I'm still fatigued. And I still have scrotal swelling and pain.
I can't say they tested anything. I sent the culture myself. I'm sure my surgeon would have done it but that would have meant the inevitabe delay of first getting an appointment with him. And then it took 6 days to find out the correct antibiotic to use. I do have to wonder how this scenario would have played out for most of you guys who don't have the ability to send your own urine culture to your lab and follow up on the results yourself.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...
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9 years 10 months ago #29001 by Patricia
That is so strange.......third generation cephalosporins generally work. Well i'm glad they tested...you suppose we would all get that kind of work up?
I've been very worried about my upcoming surgery..though it is a short one...hour and a half.....i'm thinking i would not need a foley catheter as long as i empty right before. However in talking to the stoma nurses at Cleveland they said ..OH no..a foley needs to be in place to check your fluids. I think i'd rather take the risk and not have one or maybe have a stoma nurse in the OR with me if they wanted to cath me??
I was just tested with first, second and third generation cephalosporins as i had a reaction about a year ago to a generic that as it turned out was a cross contaminated batch of keflex from Panpaxy in India. FDA recalled them but apparently my pharmacist didn't get the message. The arm test showed i could take all three but i still had blood drawn to make sure...i'll know by Friday. Very scary as i am very allergic to most broad spectrum antibiotics.
Certainly hope you are feeling better by now..
Pat
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9 years 10 months ago #28989 by egtmcsq
wsilberstein wrote:

Dear Mike,
The VCUG done at the time of the catheter removal showed the area of repair to be wide open, but only time will tell. When I asked my urologist whether this infection could affect the outcome, he said he hoped not. Then there will be the annual poke and peek which carries some risk of aggravating the situation. And finally, since I know which event caused the stricture, I also know it took 2 years to form after the injury


my god warren i remember the difficulties this stricture has caused you over the years,i wish you every success with this proceedure,in the hope it will resolve many of those issues,man you deserve a break,
my last rigid was with the french 26 which aggravated the problem you helped me with,after a clumsey rigid cysto,
thanks for all your support,

kind regards
ian
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9 years 11 months ago #28751 by Bill Jr
:side: I think in some cases, that the cure is worse than the disease.

62
Turbt (May 09)
T1 High grade
Began BCG June 09 (every 3-mo for next 2-yrs)
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9 years 11 months ago #28749 by wsilberstein
Dear Pat,
Apparently every manipulation of the urinary tract carries some risk of infection which is why I wasn't on antibiotics for the whole time I was catheterized, but I was told to restart the Cipro before the catheter removal and VCUG. As to the source of the super Klebsiella, I don't know. I've been on Levaquin a few times in the past year, which could explain the resistance to Levaquin and Cipro, but otherwise I never take antibiotics so the resistance to penicillins, cephalosporins, and sulfonamides is a mystery to me.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...
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