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1st Experience with BCG

14 years 5 months ago #28529 by mmc
Replied by mmc on topic 1st Experience with BCG
David,

Make sure to ask them about the lidacaine gel. They put that in and it numbs things up. You want to wait about 10 minutes or so after they put the numbing gel in before they do the BCG instillation.

While it certainly isn't "fun", it is usually not so bad either. It's just the prosatic sphincter area that is tight and once they pass that is no problem at all (usually).

Good luck with your BCG!

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 5 months ago #28526 by DavidW49
Replied by DavidW49 on topic 1st Experience with BCG
I have my 1st BCG treatment in 6 days. For some reason, I'm most nervous about the catheter!

David
David
T1 high grade dx 9/09
1st BCG 11/10/09

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14 years 5 months ago #28519 by sara.anne
Replied by sara.anne on topic 1st Experience with BCG
Just finished my three weeks of maintenance....Let's just say that the entire month of October was awful. The third treatment wasn't quite so bad...think it was just knowing that I wouldn't have to do it again for six months. We did settle on 1/3 dose for each this time.

I just keep telling myself...I gotta do this..it IS going to be worth it.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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14 years 5 months ago #28494 by rudyskier
Replied by rudyskier on topic 1st Experience with BCG
Lauren: that was about my same response with that treatment, the only thing I can say is that it will get better.

Rudy

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14 years 5 months ago #28493 by lhpdogs
Replied by lhpdogs on topic 1st Experience with BCG
Had my 6th treatment this morning. Now I'm bleeding moderately and peeing razor blades. What a change from the first 3 or 4 times.... so, needless to say, I'm not looking forward to my maintenance courses of this stuff next year....but in 12 weeks, if there's no evidence of cancer, I guess I have to say it will be worth it!

Lauren
TaG1 12/05
3 recurrences
BCG started 9/09

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14 years 5 months ago #28333 by lhpdogs
Replied by lhpdogs on topic 1st Experience with BCG
Wow, 22 months! Congrats. I never went more than 18 months without it coming back so far, without any BCGs. I guess I'm on that train now.....hopefully with results as good as yours!
TaG1 12/05
3 recurrences
BCG started 9/09

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