1st Experience with BCG

1 year 6 months ago #61426 by Rblake
Replied by Rblake on topic 1st Experience with BCG
I’ve had recurring TCC for 13 years. I have done BCG treatments the whole time. I always have severe pain and bleeding a couple hours after I release the solution. It’s extremely unpleasant to the point I always debate whether I’m going to go back. They have never given me any kind of treatment for the discomfort, other than the Pyridium and ibuprofen, which do not work.

The pain issue with the whole process has become a big issue with me. I just had surgery (resection of tumors) this week and normally my doctor would prescribe hydrocodone for any discomfort. Now he is too scared because of the opioid crisis. I have never asked for a refill or displayed any signs there was a problem. They just expect you to go home and sit in your discomfort. They also want to believe their alternative pain solutions actually help because it makes them feel better. They don’t realize the repeated discomfort and pain is just as traumatizing as any diagnosis. Opioids can be used safely and effectively and are indicated in many cases. It’s just become a buzz word in the media that’s hurting patients in need. 

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14 years 4 months ago #28666 by GKLINE
Replied by GKLINE on topic 1st Experience with BCG
Hey Mike! The last time I saw my Family doctor, I saw the rubber glove come out and I said "It' gone, so I won't need that!" He said "there are other things to check in there"

So what gives. I got it anyway! :laugh: :laugh:

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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14 years 4 months ago #28662 by Moonerj
Replied by Moonerj on topic 1st Experience with BCG
Hi David
Good to hear the 1st treatment went well. Drink plenty of water today and tomorrow.
BCG = Bladder Cancer Gone
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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14 years 4 months ago #28660 by mmc
Replied by mmc on topic 1st Experience with BCG
Glad to hear that it went well for you David!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 4 months ago #28659 by DavidW49
Replied by DavidW49 on topic 1st Experience with BCG
I survived my first BCG - Not as bad as I had thought!

Thanks for your advice - it helped

David
T1 high grade dx 9/09
1st BCG 11/10/09

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14 years 4 months ago #28540 by mmc
Replied by mmc on topic 1st Experience with BCG
I'm confident that it will work for you too!

A very high percentage go without recurrence when maintaining the BCG protocol.

I always seem to fall into the darn small percentage group in everything except lotteries! :D

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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