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FINALLY!!!

9 years 2 months ago #27952 by blb
Hi Cheryl,
Thanks for sharing your story - it is so uplifting and encouraging - I have just completed my one year - so this gives me great hope. My best to you both!!
Bobbi

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9 years 2 months ago #27950 by Cheryl522
Thank you for your well wishes!! There is something that I want to add to this post, Steve was 48 in July, 2005 when he was first diagnosed he is now 52. He also had a medial stricture that was most likely from by his circumcision which he had to dialate with an instrument that looked like a letter opener every night.

Even though Steve had a Ta, grade 3 with CIS, at his appointment on October 1, Dr.Hollenbeck said that there is a slim chance it may return. We will always be aware of that.

I was absolutely terrified when this journey began just as Dr Hollenbeck. The poor man listened to me cry and totally embarrass myself, but I am SO greatful to him for everything that he has said and done.

We’ve learned so much from this forum and from you wonderful people who share EVERYTHING. The reason I wanted to post his story is to let people know that there is ALWAYS HOPE!!! It’s been said time and time again you absolutely have to find a great hospital and a great doctor and we were very fortunate starting with Dr. Wolf and then Dr. Hollenbeck.

Cheryl

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9 years 2 months ago #27941 by mmc
Cheryl,

Glad you came out of the shadows (your "lurker" comment) and posting your husband's story. That is such great news and it will be inspirational to others who get a similar diagnosis.

It was a great thing for you to post!

Thanks!
Mike
:)

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 2 months ago #27938 by Nix
Cheryl,
I loved reading your story.... there is hope, and you were kind enough to share with us. I am hoping to be 2 years out on Oct 30 - if I am lucky enough to have a "clean" cysto. As peranoid as I am, if I do have a clear cysto, I am asking my Uro to continue with three month cystos for another year (I need that to feed my peranoia....honestly, I should probably visit a psychiatrist:woohoo:)
congratulations your husband and to you, too!:laugh:

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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9 years 2 months ago #27928 by Alan
Thanks for sharing because it just reinforces hope!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 2 months ago #27923 by sara.anne
Your story is absolutely wonderful, Cheryl! An inspiration to those of us who haven't come that far. I am a year and a half into BCG for CIS....now down to half dose. Was supposed to start another series yesterday, put it was put off because of what is probably an infection. Waiting for the cultures to come back. I CAN DO THIS TOO!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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