Thank you for your well wishes!! There is something that I want to add to this post, Steve was 48 in July, 2005 when he was first diagnosed he is now 52. He also had a medial stricture that was most likely from by his circumcision which he had to dialate with an instrument that looked like a letter opener every night.
Even though Steve had a Ta, grade 3 with CIS, at his appointment on October 1, Dr.Hollenbeck said that there is a slim chance it may return. We will always be aware of that.
I was absolutely terrified when this journey began just as Dr Hollenbeck. The poor man listened to me cry and totally embarrass myself, but I am SO greatful to him for everything that he has said and done.
We’ve learned so much from this forum and from you wonderful people who share EVERYTHING. The reason I wanted to post his story is to let people know that there is ALWAYS HOPE!!! It’s been said time and time again you absolutely have to find a great hospital and a great doctor and we were very fortunate starting with Dr. Wolf and then Dr. Hollenbeck.
I loved reading your story.... there is hope, and you were kind enough to share with us. I am hoping to be 2 years out on Oct 30 - if I am lucky enough to have a "clean" cysto. As peranoid as I am, if I do have a clear cysto, I am asking my Uro to continue with three month cystos for another year (I need that to feed my peranoia....honestly, I should probably visit a psychiatrist:woohoo:)
congratulations your husband and to you, too!
Your story is absolutely wonderful, Cheryl! An inspiration to those of us who haven't come that far. I am a year and a half into BCG for CIS....now down to half dose. Was supposed to start another series yesterday, put it was put off because of what is probably an infection. Waiting for the cultures to come back. I CAN DO THIS TOO!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society