Re-occurrence

14 years 6 months ago #27860 by wsilberstein
Replied by wsilberstein on topic Re-occurrence
I took the word "discharge" to imply that it was coming out of your penis when you weren't urinating. The implication is that the reaction is in your urethra, not your bladder. I have no experience with BCG sinc I was treated with mitomycin C. I did have a discharge with that, but it resulted from a reaction of the mitomycin C passing through a traumatized urethra due to a traumatic catheterization. I definitiely had pain with the discharge and I felt it when the catheter poked me on the way in, so I'm not saying your sitiuation is the same. Just be sure to keep your urologist posted regarding any progression of symptoms.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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14 years 6 months ago #27857 by Bill Jr
Replied by Bill Jr on topic Re-occurrence
Best wishes as you follow the BCG path. I just completed my 1st 3-week maintenance schedule (for 9 total so far). After #7 we had to cut the BCG-dose to a 1/3-dose. The pain & bleeding was more than I could bear at a full dose :woohoo: :woohoo:

Another Cysto in 6-weeks:S Best wishes to all!

62
Turbt (May 09)
T1 High grade
Began BCG June 09 (every 3-mo for next 2-yrs)

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14 years 6 months ago #27855 by Patricia
Replied by Patricia on topic Re-occurrence
Oh i'm here and researching and have not found this to be a normal discharge from any cases i've been reading unless there is an underlying condition which should have been tested for before instillation. A possibility
Pyuria refers to urine which contains pus. Defined as the presence of 4 or more neutrophils per high power field of unspun, voided mid-stream urine. It can be sign of a bacterial urinary tract infection. Pyuria may be present in the septic patient, or in an older patient with pneumonia.
Its not a normal process and samples should be taken of the urine and blood to see whats actually going on and of course your uro will say you read too much.
I would write Dr. Lamm who is very good at a quick response
www.bcgoncology.com/drlamm/askdrlamm.html
I'm stumped........:S Pat

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14 years 6 months ago - 14 years 6 months ago #27854 by Alan
Replied by Alan on topic Re-occurrence
Just in case you are questioning is it a UTI? However, it is standard protocol to check your urine for any infection before BCG instillation. I would presume the discharge is some kind of reaction to it. Where is Patricia when we need her?

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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14 years 6 months ago #27843 by mmc
Replied by mmc on topic Re-occurrence
Chuck,

Glad to hear that your John's Hopkins 2nd opinion agreed with the course you are on.

I got a 2nd and 3rd (my uro recommended as it was out of his area of expertise) and they both agreed as well.

Can't imagine what I'd do if I had 3 different opinions. Rock, Paper, Scissors?

I never had that discharge thing you're talking about either but I only had a couple of doses of BCG before I flunked out due to bad reaction.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 6 months ago #27840 by Nix
Replied by Nix on topic Re-occurrence
Chuck,
I have had 23 BCG and I haven't had any discharge, but everyone reacts differently.
I, too, had my slides sent to JH early on, and they also agreed with the reading (Ta CIS) and also said BCG and Maintenance. So far, so good. I go for another cysto Oct 30th.
Good Luck with the remaining 4 BCG's:cheer:


Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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