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BCG (Tired & exhausted)

9 years 5 months ago #26364 by Nix
I agree 100%, Sara Anne:)

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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9 years 5 months ago #26360 by sara.anne
BCG is no fun. After the first, I thought "what is all the fuss about?" but now, after two maintenance rounds, I KNOW what all the fuss is about.

As for if it is worth it? Every time I think that, I think of friends who have had other types of cancer and have had REAL chemo....makes what we go through with BCG look like a picnic. And then, there is the distinct possibility, as you can see from many on this forum, of staving off the disease entirely. Plenty worth it, IMHO.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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9 years 5 months ago #26351 by Moonerj
I wondered the same Bill. After 2 recurrences on BCG, I was ready to try something else, even looked into a RC. Then I got a clear Cysto, went on to BCG maintenance, and have been clear ever since. Since being off BCG for 6 months now, my physical life is back to the way it was prior to BLC.
So in my case the problems with BCG treatments have been worth it so far.
I wish you all the best,
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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9 years 5 months ago #26350 by DoninRichmond
:woohoo: Had BCG #5 yesterday, and the cath was not too bad this time! However, about 1 1/2 hrs later the pain was worse than ever. The medication (1)the one that turns your urine orange and (2) Vesicare, did little to help.

Today things (pain) have setteled down somewhat, but I am still tired & exhusted.

BCG is not a guarentee, so I wonder if the effect on your quality of life is worth it :S

7-weeks till my 1st cysto, after tumor removal.

Have a good weekend and God Bless!

Bill Jr
Tumor removed 5/4/09
\"T1 high-grade\"
Started \"BCG\" 5/21/09
Have a 2-yr treatment schedule

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9 years 5 months ago #26333 by DoninRichmond
:lol: Jack & Al you are both right! I'll tke 40% of the blame for feeling sorry for myself, leading to some degree of laziness.

Had my 5th BCG today and talked to the "NP" about it while she was filling my Bladder with that special-necter.

She said being tired & exhausted is one side-effect of BCG and that it will take 3 - 4 weeks to get my energy back after #6 (next week). :woohoo: Then a 3-month break, before we start over :S

In 7-weeks I get my first "cycto" since tumor removal, but you folks know the dance, you've been there and done that.

Have a good weekend.

Bill Jr
Tumor removed 5/4/09
\"T1 high-grade\"
Started \"BCG\" 5/21/09
Have a 2-yr treatment schedule

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9 years 5 months ago #26324 by alsimons
Jack brings up an interesting point and one I pondered over the last three treatments as the tiredness, nausea and chills became more pronounced with each treatment. In my case I never wanted to undertake BCG treatments to begin with and had opted for a RC back in January on the advice of my Oncologist. So I questioned myself if I was even going to give BCG a fair chance or was it just the last hurdle I had to subject myself to before getting rid of the bladder. Because we read so much from others experiences do we automatically condition ourselves to expect similar results in our case? I think Jake’s honesty of being a bit lazy and feeling sorry for oneself is something that along the line we have all rightly indulged in.
Taking that into consideration I have never in my 59 years been so tired that I could not get up and move around and do the things I enjoy doing until now. Sunday was 95 here in Apopka, Florida and I sat outside for a while and still had chills. Today is the 6th day from my last treatment and I feel good. I’m still looking for the person who punched my kidneys but maybe I have another UTI and it had nothing to do with the BCG. (I most likely would blame a hang nail on BCG if I could get away with it.)
Good luck on your 6th tomorrow and hang in there.
Al

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