Forum

× click the New Topic button to post

Yes, once again BCG

10 years 4 months ago #26214 by Cynthia
I am locking this topic not because it is not important but because this post has gotten very long and hard for others to follow its twist and turns. Please start a new post so we can follow along further.

Thank you

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
The topic has been locked.
10 years 4 months ago #26212 by Patricia
Actually Mike there really is a female version of the male condom catheter but its very expensive and looks really wierd...can't imagine how you would place it....you have to see it to try to figure that one out. I sent a pic to Holly of it as i thought at least maybe for one nights good sleep!!!....I guess if it actually worked and you could get a script that insurance would pay for it it might be some relief.
http://www.biorelief.com/store/Female-Urinary-Pouch.html
might be worth a try?
Pat
The topic has been locked.
10 years 4 months ago - 10 years 4 months ago #26211 by mmc
knucklehead!
>



Ooops!:silly:

Sorry Nix. I didn't look at your footer to see that you were female...

Forget about those condom catheters!

Sorry, sorry, sorry, sorry....

Some days I am just a knuckle-headed dimwit!

Mike
:S

I guess the butterfly icon should have given me a clue, but these days, you never know. I tend not to look at the icons unless they are pictures....even then, it is sometimes a group shot so I'm not always sure who I'm talking to. :)

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
The topic has been locked.
10 years 4 months ago #26210 by mmc
Nix,

Just a thought....

Have you considered using a condom catheter at night? I never heard of them until after I had my RC, but if I had, I would have been using them because of my problems with enlarged prostate. I used to be up about every hour ro hour and half because of it.

It might not help, but it may be worth checking out. I wouldn't recommend the reusable ones (even though I haven't tried them). Just seems like a better idea to use once and dispose.

http://www.exmed.net/dept.asp?dept_id=152


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
The topic has been locked.
10 years 4 months ago #26209 by Joey
Nix wishing you well and enjoy your trip.

Joey
The topic has been locked.
10 years 4 months ago #26174 by Nix
OK - I did see the Uro today, (was not going to be denied). The first thing he said was "you look tired" - gee, you think - 16 nights getting up every hour - oh well. He did a visual sonagram - and said it is inflammation. Sending the urine out for a culture and gave he an antibiotic, an yet another med for frequent urination (which I don't think will work until some of the inflammation goes.
So we are off to Vermont to see grandbabies, if I don't notice some improvement in a couple of days - call and he will call in another antibiotic.
Thank you to all for your support
Wishing all of you clean cystos and happy days

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
The topic has been locked.
  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 1568 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: tattersallinda
Yesterday Total Opened: 0 Yesterday Total Answered: 4
Total Posts: 52799 Total Subjects: 6868 Total Users: 8442
Powered by Kunena Forum