We hope he is allowed to do a neobladder b/c he is very against the idea of a bag/stoma. He says "that is no life".... it is difficult to make him see the positives.... he is old school from a Greek village. I cannot find any Greek speaking survivors with bladder removal....
I had T1 G3 bladder cancer and my doctor at Sloan Kettering recommended bladder removal. He said that the long term survival rates were much greater with the more aggressive treatment. I decided that cancer was nothing to mess with and had mine removed in Sept. I could live without my bladder and my life is back to normal.
My husband had multiple T1, high grade tumors with no evidence of lymph node or prostate involvement in 2004. They removed the tumors and he kept his bladder. Then 3 years of BCG treatments. He had a metastatic reoccurance Sept 2008. The success rate is how you look at it, I guess. You could say that the BCG treatments were successful for 4 years or you could say they failed after 4 years. And now, bladder removal is not an option for curative treatment. Based on his experience, I would recommend the most agressive approach available for your Dad.
I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away
Its a risky choice...
Dr. Skinner is at USC/Norris and quite well known in the bladder cancer arena. Dr. Herr at MSK also is a proponent of early removal.
My dad (64) has high grade T1 (non-muscle invasive) but there is some cancer cells going inside some little tubes which go to the lymph nodes. There are some cancer cells on the prostate that the doctor said just washed up there. There is no other metastases.
I would like to compare success rates numbers the Dr. gave us to what your opinion/experience might be. We have basically two options: BCG or or remove bladder...
BCG: He said the chances of BCG working are about 40%. He also said that if it doesn't work and it does invade the muscle then we would have to take out the bladder. Removing the bladder at that point would 'cure' him with 60% probability.
Bladder removal now: 85%-90% chance of being 'cured'.
Any thoughts on these probabilities/success rates???
We are recommending bladder removal