Britt,
The good news is that if you got the term CIS from me and not the doctor, maybe you don't have it. If not, then BCG probably isn't needed. Sorry if I caused confusion. Only the docs can tell you if you have/had CIS. That should be in the diagnosis. If they were saying its not aggressive then they probably didn't see CIS in the pathology or the tests. I wouldn't expect that they don't know CIS is aggressive.
Pat gave some great places for 2nd opinions already. You may want to put together a list of questions to take with you (both to the 2nd opinion and to your regular uro). Write the answers down while having the discussion. That's what I did so I didn't miss or forget things.
It's typically a confusing time so making notes can help. At least it helped me.
For me, they saw a flat red patch that wound up being CIS. You can't always see CIS and color differences are not a positive indicator for CIS either. I think pathology study of biopsied tissue and/or FISH test are the typical way to know for sure.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...