I had briefly contemplated holding off on BCG that was recommended by my urologist, as I just had one recurrence, two tiny low grade tumors that occurred two years after my initial diagnosis and TURBT (the initial single tumor was the same type). I'd read that BCG was not as effective in low grade tumors as in higher grade tumors and CIS, but decided to proceed after being convinced that just the fact of recurrence was probably enough to warrant the BCG. I had my the initial BCG treatment for 6 weeks back in August-September, have had two all-clear cystocopies since then, and have 3 weeks of maintenance starting this Friday. I'm happy to report no side-effects whatsoever from the first 6 weeks, and am hoping for the same result now.
My urologist uses the same full-strength BCG for maintenance treatments, but reduces the strength if these later treatments cause side effects.
Best of luck!
Ann