Newbie-34 year old malT1G3 w/cis...scared to death

17 years 4 months ago #2437 by Mike
I think this is a bit like retail - there are 3 laws of retail: Location, Location, Location :(
Because the bladder is kinda down there and plumbed into bits not discussed in public it all gets swept under the medical carpet - no Elaine NOT Rug!
Just imagine any woman designing a cooker that was as hard to clean as cookers are - just the same if Medicine had been dominated by women rather than men do you think Period Pains and Menopause would still be such a hastle! ;)
OK so Bladders don't get discussed and as it TENDS to be a problem of those over 5 and breeding age what is the incentive for cures and replacements. I can not see why they can not inplant a silver box or a dacron bag with electrical valves - the body is fairly tollerant of silver and dacron.
Just thing a 1.1/2pint bag and when it reaches 1.1/4pts. a mild shock as warning you have like 10 minutes - then a pressure switch that opens the valve to a dacron outlet in standard location by gender choice! ::)
Hey why do people pretend sex isn't important? Each generation thinks it invented it :o
You just have to be a darned sight more careful with your choice of words than Bubbles ;D
There are a number of medical procedures that can assist, including the fitting of errectile pumps which I gather are very effective and don't have the problems of chemical solutions :-[
I have a friend who had cancer of about everything and he decided to try Viagra - his comment was 'never again, what do you do after 8 hours' ;D OK OK I know what you are thinking ;) I'm not sure taking two would have that effect :o
The other problem was it left him with a terrible headache for almost 24 hours [no I don't mean his wife ;D ]
OK OK kids this biology lesson is NOT supposed to devolve into a practical but I do notice all of a sudden its Mr. Woodie ;)
May I take the liberty of pointing out that was Mr. Woodie The CARPENTER ::)
 
Hey chat with Mr. Woodie he is worried about all the same things - I have listened to people in hospital saying they would rather have another year of normality than have the op. with the risk of errectile failure - sure, if your personality is deffined by a penis or a vagina but it just may occur to the more mature that the brain and emotion, care and reliance are in the brain not just in the groin!
That said - it is vitally important that you are intelligently honest with each other - I have talked with people, male and female, who claim they never realised how much fun they could have until the obvious was precluded! ::)
Mechanical & chemical assistance is one route that can be followed and many find this brings a new lease to what may well have been a flagging enthusiasm based on boredom. Others become reliant on the variety it forces upon them and find that even more fulfilling ;)
One only has to pick up any women's magazine to realise that the majority of women would benefit immensly from the increased protraction and greater imagination rather than wondering what all that was about as they follow the patterns on the ceiling for the umpteenth meaningless time :(
Already on this list you and Elaine have been fantasising over young garden boys, well hung windows, etc. etc.
Of course you should talk about sex - it is important in relationships.

ALSO do not forget the omni presence of fear and even awareness of mortality on this list - it was ALWAYS practice during my service that if a widow was to be informed of the death of her husband,a brother officers would attend to tell her but NEVER alone. Sex frequently has a great intensity when confronted by death. :o
Well young lass perhaps you should surprise yourself more often and consider the bees and the birds as an alternative. IF you have a fulfilling sex life now surely you do not claim it is purely anatomically dependent ::)

The future is ALWAYS a Challenge and when it stops being a Challenge and fails to surprise you how can you tell you aren't dead :-/

Regards,
Greg L-W.

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17 years 4 months ago #2413 by Jmema
Vin, I hope Lou Graham comes on line today. When I first came to the forum and was so scared even though I am the "old lady" of the group Lou was there and taught me to breathe. You take a big breath but when you take in the breath you push your stomach out and when you release the breath you pull your stomach in. Do that several times and it is very calming. My thing was music. Lou and I both love Josh Groban's You Raise Me Up and I had my CD player with me all the time and when the post it notes would start flying in my mind I would turn on the music and let that take over. At one point Claire (Clur) told me the anticipaation is greater than the doing and once you are on the treatment train you are much calmer. She was SO RIGHT. This is the place to be. This forum got me through some very dark days. I have had my surgery. I am 5 weeks post op and I baked an apple pie on Wednesday. Life is good. :)
My best wishes and prayers are with you....Jean

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17 years 4 months ago #2398 by Rosie
Vin, I can certainly equate with your anxiety and reality slap of having been diagnosed with cancer. I can remember wondering around in a shopping mall feeling "abnormal" right after my diagnosis and wondering how many other people are "abnormal". I found it hard to feel joyful or happy. Because you are in the early stage of this journey, I highly recommend you get some anxiety medication. It certainly helped me. Many cancer patients are given Antivan (Lorazapan is the generic). I doubt if your Urologist can prescribe it but you PC can.

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17 years 4 months ago #2397 by pweization
I think I'll do just that.
Oh and by the way...the movie is called "Modern Problems". Chevy Chase is in it. I hadn't thought of that scene in a while but that's pretty much exactly what i was eluding to.

34 yr old male
diagnosed 10/13/06
T1G3 CIS

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17 years 4 months ago #2391 by Mike
Re: 100 Questions and Answers About Bladder Cancer
Reply #5 - Today at 8:08am The section on sexual function sounds promising... Good chance for Mr C to be ok.

Well Vin it looks like you better go get that book today!!! The above quote is from Elaine. She has the book and it may help with some of the questions we have........

I wish I had paid $39.95 for overnight pigeon courier.......as it is, I splurged and picked two day delivery!

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17 years 4 months ago #2390 by Mike
Good morning sunshine :)

Crankiness is allowed. You are only human. You have a full plate.

I am anxiously waiting for the book I ordered....www.jbpub.com/catalog/0763732532/

Dr Carswell wrote down two resources on Mr C's discharge papers yesterday.
1) the book mentioned above that he co-authored
2) blcwebcafe.org

I would expect him to write down his own book but to write down this website is a great testament to the fact that this website is SPECTACULAR!

Maybe pack up little Madeline and the wife today. Go sit and have lunch or ice cream and go to the bookstore and pick up a few books that you can have in hand to highlight and make a list of questions for your appoinment tomorrow.

When I am stressed I have a hard time concentrating so having something in hard copy print in my hands really is beneficial.

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