You right, I have these questions to my Uro, and he just answered that since it has been tow years the last TURB and all cysto came clear , he decided to move me to a yearly cysto. I am still not believing that but cause he is my Uro and I need to trust him and I love the idea that I am doing good I just happy and wish it's safe to be on a yearly cysto. you know we all need some good news even if we have some skeptical feeling. just hoping it is right.
The reason my URO moved me to 6 months cycos after 1 year free, is because my monthly BCG treatments have been working so well, no cancer cells in my urine or blood. I still have 2 monthly BCG treatments left.
If everything is fine in April, he will then start me on Dr. Lamm's recommended annual BCG maintenance schedule. I am wishful thinking, that I would start 1 year cycos next year. My URO insists on 6-month Cysos until 5 years tumor free. I am like you Superficial Stage 1.
Sorry for the confusion.
TA Grade 1
30 BCG Treatments
Cancer Free since Nov 2007
10 years 4 months ago - 10 years 4 months ago#22883by pemquid
From these posts, it looks as though there are people whose doctors are moving them to cystos every 6 months after one year of all clear 3-month check-ups. Or, am I misreading the posts? My doctor does cystos every 3 months for two years, before switching to every 6 months for the next 3 years, then annual after that (assuming all clear all that time). I thought this was the standard. I was unfortunate enough to have a recurrence at exactly the 2-year mark from the initial tumor (low grade, non-invasive), just when I was looking forward to going to check-ups every 6 months. So, as of June 2008 my 2-year clock started all over again, and I'm still on 3-month cystos. (Plus, the BCG protocol for about 3 years.)
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.