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9 years 11 months ago #23112 by wsilberstein
Now how did I miss that?:laugh:

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 11 months ago #23110 by ddoyle
The trick is to let the air out of the balloon part in your bladder before you pull it out-;-)

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9 years 11 months ago #23092 by wsilberstein
And yet I feel like a whiner because nobody seems to have the degree of pain I have with the stricture or the persistence of pain and urinary symptoms after procedures. My urologist says I have a sensitive urinary tract. Lucky me. I would be OK with the discomfort of dilations and self catheterization if only I would have no symptoms afterwards (i.e., between procedures or after).

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 11 months ago #23037 by slabman
Warren-you pulled that thing out yourself? What a tough cookie you are! Yeeeeeeeow! :ohmy:

Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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9 years 11 months ago #23030 by wsilberstein
Oh, BTW David, I got so caught up in my stricture response I forgot your question regarding Peyronie's. Thankfully I have been spared. The stricture has turned out to be more than enough to bear.... and yet I have to consider myself lucky since I remain cancer-free.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 11 months ago #23029 by wsilberstein
No question that the stricture is a result of treatment. A traumatic catheterization during the mitomycin C treatment resulted in urethritis with each subsequent treatment. The stricture became eveident 4 years later, and had to be dilated for each subsequent cystoscopy in order for the scope to pass. Since dilations tear (damage) tissue, with each procedure the stricture just got worse and worse.
The catheter's out now. I was supposed to remove it Monday morning, but by Sunday night had had all I could tolerate. I didn't even sleep well with it since I was constantly waking feeling like I had to pee anyway. And I couldn't move without feeling it.
Today I had to travel 2 hours to my wife's uncle's funeral. Another sad story. I really didn't know if I could handle the trip, but somehow made it. Perhaps the healing has begun.
I hope self catheterization works as a method to keep the stricture open without resulting in my having constant urinary irritation.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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