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Hi - just diagnosed with High Grade Non Invasive

10 years 11 months ago #22829 by slabman
I didn't have the second TUR after initial tumor removal, however, two subsequent cystos have revealed all is clear. In view of the results of the study mentioned by Patricia, I am of the opinion it now makes no difference whether I had that second TUR or not. Or is there something to be gained by the second one?

Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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10 years 11 months ago #22827 by Tony
Great news, Suzi.

When you had a recurrence, what was the reaction of your Doctor ? Is it somewhat more expected in the first few years ? I understand it will come back with me too & I am trying to prepare myself for it, I will start BCG next week & do want the doctor to recommend RC if it comes back quickly, so far it is non-invasive.

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10 years 11 months ago #22651 by suzi
Tony,
I was diagnosed with Ta-G1 three years ago NOV 05
First TURB NOV 05
reccurence and RE TURB DEC 06
BCG+ INTRFON ( 7 COURSES) JAN 07
Only BCG (6 COURSES ) JUL 07
I am free so far
you will find great support over here ,
good luck to you
Suzi

Be strong and don't give up.
a warrior

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10 years 11 months ago #22650 by Patricia
David..that page by Dr. Herr at MSK is on the first page of this post..
Pat

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10 years 11 months ago #22649 by DIB
Tony:

My doc will not say what he thinks chances of keeping bladder are. And I have asked.

What he will say is that by the 2 TURs + MMC I have reduced my 5-year chances of recurrence from 80-90% to 10-20%. And that, and this is putting words in his mouth, that the longer I go without a recurrence, the less likely he is going to recommend an RC (radical cysectomy = bladder removal) on the first recurrence.

He says he is conservative and if I had had a recurrence at my first post-BCG cysto (in Sept 2008), he would "likely" have recommended an RC. Thankfully the little red spots and white stuff he saw during cysto were only irritation of the bladder due to the BCG, etc. but it took another TUR/biopsy to confirm that.

So I am getting used to the idea that I have to go in 3-4 month increments and hope that it then goes to 6 month and then one year increments.

Ask away if any other questions.

Good luck.
David

PS - Are you having a second TUR before starting the BCG?

Male Dx T1G3 5/08 @ Age 59. TURBT 5/08; TURBT+40 mg MMC 6/08; BCG (6) 7/08-8/08; Cysto & TURBT 9/08; BCG Maint(3) 10/08, 3/09; 7/09; 11/09; 5/10; & 1/11. Clean cystos 2/09, 9/09, 3/10, & 10/10.

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10 years 11 months ago #22641 by Tony
David, thanks. I guess I feel the same way you do. I was given chemo after my 1st Turb also, my fear is that I will lose my bladder too, I also can't deal with the 3 month check ups, What does you doctor tell you about your chances of keeping your bladder ?

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