Greetings fellow superficial survivors.
I am SO happy to have stumbled upon this website. I found it on a Facebook Group wall posting. And just in time I might add.
In less than a week I go for my 5th TUR. I have been so tense these last few weeks since my last cysto that my shoulder are like knots. I am dreading the surgery but more so I am dreading another round of BCG and then monthly maintenance.
After my 3rd TUR my Uro put me on a 5 week instillation of BCG. Less than 6 weeks later I was passing blood so went for a cysto the next day. Sure enough 3 more tumours. (<-- thats how we spell it here in Canada)
A few weeks later I had another round of 5 BCG's.
I had a wonderful summer at my cottage in Prince Edward Island ( any Anne of Green Gable fans here?) but my follow up cysto on Sept. 30th showed more tumours.
So Nov 5th I have surgery. He keeps me overnight and runs an irrigation system for about 18 hours.
I'll probably start BCG , 6 weeks this time, near mid-December ( just in time for my b'day and C'mas)
followed by monthly maintenance for I don't know how long. Maybe a year?
I haven't had much reactions to BCG except being tired and spasms but its the cath that I dread. Of the 5 nurses that rotate, all but one are great. However I have decided that this time I am going to consult with the head nurse to try not to get that one nurse who doesn't do a cath very well. During my other 2 rounds I had her twice and each time I cried myself silly for the day. Its all in her technique.
Anyway, thanks for letting me share my story and I look forward to getting to know you all.
