I share the Psoriatic Arthritis/BCG syndrome. No doctor I have consulted seems to have ever heard of this connection. I take 200 mg of Celebrex daily and it seems to help quite a lot. I have also tried to increase my walking to at least a mile a day or more and I take a tablespoon of Norwegian cod liver oil daily. There were several studies started a few years ago with the purpose of finding out if Celebrex could be a palliative for BC. The studies were mysteriously dropped and I have not heard why. Does anyone know about these clinical trials?
It's so nice to get the validation. When my symptoms first presented themselves (like gangbusters, 2 years ago) it was an uphill battle to get the Doctor's to listen to me. Thank goodness for Dr. Lamm, who supported my idea that the arthritis was triggered by the BCG. His way of saying it is that people who are "prone" to arthritis may have an arthritic response to treatment...
Well, my proneness runs pretty deep, and I'm afraid that the arthritis is here to stay. I'm not sure if it is a blessing or a curse, just because of the Celebrex issue...
My arthritis moves around, but right now seems to be settling in my feet.
This right thumb always give a fit, and my handwriting, at this point, makes me think that I should have become a Doctor. I used to have a beautiful handwriting....
Old age, gray hair, arthritis and bladder cancer....sigh...
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006
One quick note: I forgot to mention that during my BCG treatments I started having pain in my thumb joint - that one you use to pick up a glass or hold the computer mouse. It would lock in two positions. Also BCG related. My personal belief is that the reactive arthritis affects the joints that have already had some arthritic damage.
One week after my 6th BCG installation my left knee swelled up overnight and I had to use a walker to get to my Internist's office. I had an X-ray and the report came back "mild arthritis". Two days later my leg swelled from my ankle to groin. I went back to my Dr. and she sent me for an ultrasound to find out if it was caused by a blood clot. I wasn't. I was prescribed prednisone and put on anti-inflamatory meds. Eventually the leg swelling went down but it took longer for the knee to heal. Neither my internist nor my uro thought it was related to the BCG, but it never happend before or since and it's been almost a year. (I didn't have any more BCG treatments).
I'm putting in a link to all of the PubMed abstracts that deal with reactive arthritis and Reiter syndrome associated with BCG. Then google reactive arthritis and Reiter syndrome to see which most closely resemble your symptoms. I don't think you can take prednisone during your treatments. I hope your aggravated arthritis will go away after being treated.
All of the articles say that this is a very rare symptom of BCG. I beg to differ. Take the info from others on this website and the PubMed list to your Dr. Then they can't dismiss it. Good luck!