I'm with the gal with the beautiful hair. Two years ago I had some "calcium" (Arthritis?) taken off a vertebrae to alleviate nerve pinching. This was followed by a staph infection which required another surgery and 6 weeks of I-V antibiotics. I then began to experience pain "down there" which I rationalized as being simply a result of all the surgery. Finally, the bladder tumor was discovered and removed. Now, no Doc will ever put all this together as far as cause and effect, but I do have my opinions on all this and no one will convince me otherwise.
The back surgery did alleviate my sciatic pain and I can remember how good it felt lying in the hospital bed recovering from the TURB while dealing with that catheter. On April 21 I started the 6 weeks of BCG and was surprised at how little direct side effects I seemed to have with it. Within 2 months I was having stiffness in finger joints, the back/leg pain condition returned and my bunion again began to ache, amongst other things. An MRI showed the nerve impingement had returned in my back. But another back surgery is, of course, out of the question. So I'm now on a neurological medicine which makes me think like an idiot, something no one wants to be on for long term. But the good news is it's supposed to cause weight loss!
So where does one go from here? Who knows? I guess, like most of us here, we all feel we're in a box. We have no real place to go, do we? All roads seem to lead in undesirable directions, it seems.
But now, with the insight of Rosemary, I need to do some more research on this arthritis thing. Hey, maybe there's a miracle here and if I can get finished with the BCG the arthritis will subside and the back pain might even diminish a bit, I can get off this medicine and can feel less like a Zombie again. I can dream, can't I?
DX April 2008
TURB April 2008
Last BCG (#15) April 2009
Had tennis elbow 5 years ago for 6 months. It has come back with BCG. If that is all i incur I'll live with it but, still no fun. Rosemary, I believe you have hit the nail of the head. There is a relationship!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
10 years 8 months ago - 10 years 8 months ago#21970by Rosemary
Okay, Dave, I'm gonna use my brain here again....
Before BCG - No arthritis
2 weeks after 12th installation, I can barely walk to my car, much less fasten my seat belt! (Much less zip my pants!)
To me, that's a no brainer. I did have to write to Dr Lamm in order to get an affirmative answer, and even then I had to convince my Urologist of the connection. Once he was convinced, he wrote me this strange letter about agreeing to administer BCG but making me responsible for the risks...
The last time I talked with the Rheumologist he said that the BCG "triggered" (as opposed to induced) arthritis made sense to him. He liked to tell me stories about when he was a Duke resident, the residents would inject each other with BCG to see what kind of reactions that they would get. He said that BCG was like aspirin and that you would get 1000 different results with 1000 different people.
(Injecting each other with BCG? I guess Kicks just keep getting harder to find!)
As for me and my house, I don't have to have a Doctor to tell me where this arthritis came from. I know where it came from...
Thanks for the compliment, Slab!!
Spelling police!! RHEUMATOLOGIST
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006
I'm travelling for the next couple of weeks but I notice definite joint soreness especially in my knees and hips that I did not have before my first round of 6 BCGs that ended in mid-August, now 8 weeks ago. My uro says these effects will go away and I do not think he believes in a relationship. Like Rosemary, I have psoriasis and my dermatologist says she can find nothing in the literature about a relationship between psoriasis and BCG leading to psoriatic arthritis.
I will probably see a rheumatologist when I get home. I start BCG maintenance in mid-Nov.