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11 years 2 weeks ago #21600 by Rockyiss
Hi Ian, i havn,t posted for a long time because my husband developed lymphoma and we have been fighting it.
I left my first uro ,he was a nice guy but wasn,t up front with me. My uro now is a very good Dr. at John Hopkins. Only you can decide who you need to go with. A surgeon who worked on my husband had no personality , could not look you in the eye when he talked to you, but if you asked hospital staff who they would want to do their surgery they always picked him.
I will pick skill anytime over great personality.
My bother also had bc and he has told me how much it hurt to get his cysto, I always tease him that I am tuffer then he is when I get my cystos !!
Really I feel sorry for you guys and what you all have to go thru.
Hope all goes well for you, Rocky

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11 years 2 weeks ago #21597 by Patricia
Hi Ian....well as for bedside manner...one of the best over here at MSK simply doesn't have time for talk but he has one of the surest scalpels in the country....so i'd take the advise of your friend. Its great that they have the blue light Hexvix over there..i understand that as of August the UK has adopted it as standard procedure in the diagnosis of bladder cancer.
http://www.photocure.com/Investors/News/Phase-III-study-results-demonstrate-that-Hexvix-cystoscopy-leads-to-significantly-improved-patient-outcome/
Pat

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11 years 2 weeks ago - 10 years 4 months ago #21595 by egtmcsq

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11 years 2 weeks ago #21594 by Nix
Ian,

A split penis - it sure sounds like a big deal to me! Makes me happy to be a girl :) I dread my cystos, but you must absolutely hate yours! You should certainly go to a Uro you can communicate with. Do you only have a choice between the two - the first one and this one? Maybe you could get another recommendation? Is there a cancer center near you? Maybe they would be better since they deal with this more frequently.
I am sorry I can't be of much help, but I too am happy you have the good news of the low grade BC.
When is your next cysto?
Good Luck,
Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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11 years 2 weeks ago #21592 by slabman
WOW!, Ian, I can imagine what you're going through...I think. MY plumbing was a bit closed off after the initial TURB, so the Doc had to use those rods they use on women to dialate my penis opening. And the initial BCG caths also posed problems, so my nurse ordered smaller catheters just for me (She's great!) Now those caths seem to go in just great and I even think I could use a std. size. but why bother? Seems to me like the smaller it is, the less damage one would incur to the urethra.

Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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11 years 2 weeks ago #21590 by kathyk
Ian, that sounds absolutely awful and I'm sorry I can't respond with any advise.
I think you should start a new post entitled :woohoo: "Help! They Split My Penis". I think you would get a whole lot of hits from men trying to find out how to keep that from happening to them and hopefully get some informative responses from the males on this site.

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