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Symptoms of BCG reactions

11 years 1 week ago #21694 by michstate89
Sara Anne,

Sorry I am posting this a little late. I had little reaction to the first couple of doses, then started to get hit a little harder - fever, bad bladder spasms, achy, etc. After I visited Dr. Lamm he recommended a fraction of a dose and have had better treatments. Doesn't hurt to get a second opinion on the protocol - my uro even recommended it to me.

Ross

Ross M
TaG1 March 06
Recurrence Jan 07
BCG Maintenance after 6 week treatment

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11 years 1 week ago #21688 by slabman
Guess I must be lucky. I had BCG #10 yesterday and when emptying out, didn't even have the burning sensations we usually get. This morning I woke up more refreshed than usual, with no symptoms whatsoever. So this seems to show each of us is diffferent.

Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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11 years 3 weeks ago #21459 by Nix
I get very tired the next day - and once I had a slight fever. Other than urgency, the symptoms leave within two days. I know everyone reacts differently but I think it would be good to talk to your doctor and shoot off an email to Dr Lamm.

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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11 years 3 weeks ago #21453 by mmc
Sara Anne,

Sorry to hear you are having problems with the BCG. I did not have your symptoms but it sounds like an email to Dr. Lamm might be in order. Sounds like a lower dose with interferon may be in order (but I'm not a doctor nor do I play one on TV).

Best of luck!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 3 weeks ago #21452 by sara.anne
I am enduring my first maintenance BCG, and, as my uro warned, it ain't as simple the second time around! After the first maintenance, about 5 days later, I was absolutely wiped-out tired. Could hardly move. Last Wednesday I had the second and by Friday I was feeling "poorly" and by Saturday I was just plain sick...felt terrible. By Sunday I had diarrhea which came off and on until last night when it started being continuous. Along with a few chills, no fever, and just feeling lousy. Today's session has been postponed until next week.
My question to you: as anyone else had these symptoms? My uro seems to feel that they usually do not last as long, and that gastro-intestinal problems are usually not the issue.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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