cannot go on right now

15 years 7 months ago #20569 by Cynthia
Replied by Cynthia on topic cannot go on right now
LOL I was writting this and got a phone call so I am really giving Karen a second here in different words.

One of the best pieces of advice my father ever gave me was that if something did not seem right it probably wasn’t. Your present Uro may be on the right track but you will never know for sure unless you get another opinion.

Another fact you are facing is that your Uro is half retired and you will need someone to keep check on you for the rest of your life. So finding a new Uro before you have too sounds like a good plan.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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15 years 7 months ago #20565 by momof4
Replied by momof4 on topic cannot go on right now
orpheus,

I do not know anything about the non-invasive form of BC...However, I suggest you listen to yourself...If you are second guessing your Uro...I say go with your gut feelings and go somewhere else. Since he is retiring, or semi-retired anyway, you will need another Dr. if only for maintenance...Always trust that little voice when it says: "Something just isn't right"...

Stay Strong,
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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15 years 7 months ago #20563 by orpheus
cannot go on right now was created by orpheus
I am having a criis of faith in my Urologist. He is in semi-retirement and only doing office surgery once every other month. I want to believe he is on the right path. I had a second opinion in the beginning of my treatment and I decided he was doing the right things. I no longer feel this. I have finished 9 treatments with BCG and have had 4 inconclusive turbs in the past 2 years, and no further biopsies, after my first of low grade papillary non invasive. This last look he remarked it was "almost too small to see, smaller than a pin point". I do not want to diagnose myself but from what I am reading some turbs are truely unecessary. I am at sea. I need some advice and counseling that is not from the medical "establishment".

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