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One week until next cysto

11 years 10 months ago #19818 by Nix
Lynn,
I think we are all in the same boat - good for 2 1/2 months then start getting nervous! I try to keep busy and pray that all is well. Please let us know how everything goes...........I will be thinking of you.

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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11 years 10 months ago #19806 by ale53
Thank you all for your kind words!

I'll start a new thread about the second opinion on the pathology as I think it may be interesting to others.

-Lynn

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11 years 10 months ago #19792 by Rosemary
Lynn,

I am also interested about your second opinion pathology report. This same thing kind of happened to me, only it was my 2nd biopsy at Re TURB (for residual tumor) that bumped me up to high grade.


Ro

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 10 months ago #19786 by Marne
Dear Lynn,

I'm in the same boat as you but I find if I make my next cysto appoint before I leave the doctor it helps. I try to keep very busy right before my appoinment.
I think everyone is nervous right before. Go out and do things that make you happy

Good Luck
Marne
Question
You wrote First Path report Low grade
2nd opinion high grade
Do you know if this happens frequently? What are the doctors saying about this?
This is such a confusing disesse

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11 years 10 months ago #19782 by DIB
Lynn:

I think we all share the same anxieties to varying degrees about the quarterly cystos. You are not whining! Some people try to deal with it by convincing themselves that the news will be bad so that anything else is good news. Others try other things. Just know that every one of us worries about these cystos to some extent, usually with great anxiety. I'm sure you will hear from others about how they try to deal with it.

My only sugggestion is to do the best you can, try different coping mechanisms and see what works best for you. Don't assume that you will be able to eliminate the anxiety; it is a part of dealing with this disease (and life).

And know that we are out there thinking about you.

David

Male Dx T1G3 5/08 @ Age 59. TURBT 5/08; TURBT+40 mg MMC 6/08; BCG (6) 7/08-8/08; Cysto & TURBT 9/08; BCG Maint(3) 10/08, 3/09; 7/09; 11/09; 5/10; & 1/11. Clean cystos 2/09, 9/09, 3/10, & 10/10.

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11 years 10 months ago #19778 by Alan
I figure it's 5/10 minutes of my life and if that is all I face for the next 20 years-so be it! There are many with you including me.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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