Recur after 2 years \"all clear\"

15 years 8 months ago #19796 by Rosemary
Replied by Rosemary on topic Recur after 2 years \"all clear\"
Sorry, Quid,

I needed to delete this post, and can't find a DELETE button....excuse the interruption, please.

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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15 years 8 months ago - 15 years 8 months ago #19794 by Rosemary
Replied by Rosemary on topic Recur after 2 years \"all clear\"

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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15 years 8 months ago #19765 by pemquid
Replied by pemquid on topic Recur after 2 years \"all clear\"
Lauren--
I ran across something in my searches that related to insurance and bladder cancer. If you do a search on something like "insurance underwriting and bladder cancer," you might turn up something. People with low grade, non invasive papillary tumors are apparently not considered high risk by insurance companies, at least from a mortality point of view. I think even for health insurance, if there's been a fairly long period since the last recurrence, coverage should not be a big problem -- but I'm no expert, so you'd need to check on that. My urologist did say that bladder cancer is considered one of the post treatable (non-fatal) cancers, but also one of the most expensive because of the need for lifetime monitoring, and the high rate of recurrence.

Marne--
I think I'm most likely going to go ahead with the BCG, as recommended by my urologist, though I haven't spoken to him since the surgery last week and the receipt of the pathology report. He said BCG couldn't be started for at least 2-3 weeks to allow healing to take place

Ann

Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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15 years 8 months ago #19760 by Marne
Replied by Marne on topic Recur after 2 years \"all clear\"
I know how disappointed you are. I just had a recur after 6 months (very similar situation to yours) and I'm awaiting the biopsy results. I guess at this point we have to consider ourselves lucky. I'm not saying I like going for a cysto every three months but I do feel reassured that if anything does recur at least they will catch it right away.

I would be interested to hear what you decide to do regarding follow up treatment?

Good Luck
Marne

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15 years 8 months ago - 15 years 8 months ago #19757 by grampadonut
Replied by grampadonut on topic Recur after 2 years \"all clear\"
as far as giving blood is concerned..my s/o gave after 2 yrs cancer free.. at red cross
i would ask if you want to give(great that anyone wants to donate)

grampadonut
dx t2-g3
05/07/08

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15 years 8 months ago #19755 by lhpdogs
Replied by lhpdogs on topic Recur after 2 years \"all clear\"
Ann, those were the exact words my uro used! "if I was to have any kind of cancer, this is the one I'd choose." So I lucked into a "nuisance cancer"? Go figure! I still feel odd, being the only woman in his waiting room, with a whole lotta older men with prostate issues!

I know I will face another recurrence much easier... that first one was really an eye-opener, though. One of my biggest concerns is I'd like to change jobs in a couple of years; find a place where I can get good insurance coverage and also start my own business (I train dogs). But this is one helluva pre-existing condition, and, being a nuisance cancer, it's going to be a nuisance for the rest of my life.

I can't give blood anymore (gotta be 5 yrs cancer free, and that's not looking likely;) ) - and I swear that the scar tissue in my bladder is making it less expandable, as I have to pee so often. More nuisance!

But I still have my organs, I'm not sick, and I thank God every day for my good health, no matter how much of a nuisance it is!

Lauren

TaG1 12/05
3 recurrences
BCG started 9/09

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