1. Forum
  3. All Categories
  5. Non Invasive Bladder Cancer
  7. maybe a better Question is does your uro check urine

maybe a better Question is does your uro check urine

15 years 9 months ago #18326 by susant
Replied by susant on topic maybe a better Question is does your uro check urine
Yesterday the nurse wasn't going to check my urine till after she got ther cathater in. I had to tell her that if she found infection i couldn't have bcg that day. I'm not very smart i know, but aren't they suppose to know that if even i know that?

it seems ok now since i told them, but i feel like i am the doctor and the nurse not them

Please Log in or Create an account to join the conversation.

15 years 9 months ago #18294 by Patricia
Replied by Patricia on topic maybe a better Question is does your uro check urine
Maybe your doctor doesn't know how the nurse is administering it? He should know. I posted on your other board...here it is again
www.drugs.com/ppa/bcg-live.html
Pat

Please Log in or Create an account to join the conversation.

15 years 9 months ago #18289 by sarahlee
Replied by sarahlee on topic maybe a better Question is does your uro check urine
Im not going to tell my doctor how to do his/her job. if they want to give treatments they need to know how to do it right , they should not depend on patients to tell them how to do their job, if they dont know what their doing they shouldnt be doing it. my doctor has 4 people hes treating right now with BCG and he s done it plenty of other times. IM no way going to that office for anything if giving out this medication is so hard to do right ,I dont want to test him on more difficult things in the future. this Doctor sees plenty of bladder cancer.he should know what and how.

Please Log in or Create an account to join the conversation.

15 years 9 months ago #18288 by sara.anne
Replied by sara.anne on topic maybe a better Question is does your uro check urine
sarahlee, if you took your car to a mechanic and didn't feel that he was doing a good job (and maybe wasn't fixing things that might endanger your life) would you feel uncomfortable going to a different mechanic or asking him questions? A doctor is being paid, BY US, to do a job. In this case, our lives depend on his doing a good job. If, for any reason, we feel that the match up isn't right, we have the right/duty to ourselves to ask questions or even change "mechanics." Of course we can do it politely.
I have raised several issues that I have learned about online with my uro. He welcomes the discussions.
Went to an internist I really liked for serveral years. Had "asthma" which he was treating. Not helping. Finally, on my own, went to a pulmonologist and found that I did NOT have asthma. It was severe (and getting worse) GERD. Took months to clear it up. I changed internists. But I was the one who decided that things were not right and made the change.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

15 years 9 months ago #18283 by michstate89
Replied by michstate89 on topic maybe a better Question is does your uro check urine
My uro told me right up front that he does not see much bladder cancer in this part of the country. He dealt with a few cases when he was in Houston. He sent me to an oncologist for BCG, however the oncologist called and spoke with my uro to let him know where the outpatient cancer center is at the hospital - I was sent back to my uro for the treatment. The first time I had BCG I did not get checked, but after many consults with other doctors and my questions from reading about BCG, my uro insists on testing before BCG. He even referred me to Dr. Lamm just to review our protocol. What I am trying to say is that I hope your uro is comfortable reviewing your treatment and will be open to questions like mine was. I fully trust the doctor that I am seeing and I know I am getting good care. I hope this works out for you as well.

Ross
Ross M
TaG1 March 06
Recurrence Jan 07
BCG Maintenance after 6 week treatment

Please Log in or Create an account to join the conversation.

15 years 9 months ago #18279 by sarahlee
Replied by sarahlee on topic maybe a better Question is does your uro check urine
I dont like telling my doctor and his nurse what to do, thats why Im trying to find the norm, I think I already know and every visit I felt like it should of been checked, I dont like having to tell them ,they are the specialists , Im so disapointed,and concered I dont want to go back.Does he have to be the poke and peek guy? I have someone else to do that,I really dont trust him any more.

Please Log in or Create an account to join the conversation.

Moderators: Cynthia, eddiek, sara.anne
  1. Forum
  3. All Categories
  5. Non Invasive Bladder Cancer
  7. maybe a better Question is does your uro check urine

Login