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maybe a better Question is does your uro check urine

10 years 5 months ago #18575 by Patricia
Saralee...trying to get this post back up in the forefront instead of hidden 7 pages away...lets see if this works..........:S
Pat

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10 years 5 months ago #18366 by Rosie
Sarahlee, Pat is so correct. After several recurrences of non-invasive papillary TCC. communicating with Wendy Sheridan, who directed me to some studies done by Dr. Mark Soloway, I contacted him. He directed me in their long term trial of watchful waiting rather than surgery then directed me to a physician in my area who would also be better able to get clearer margins without threat to my left ureter orifice where the recurrences kept appearing. He also told me of the one instillation of Mitomycin C within an hour of TURB that would be beneficial at delaying or eliminating a recurrence. Dr. Soloway is an expert in both non-invasive and invasive bladder cancer and is also helpful in directing us to best treatment in our area. Thank you Dr. Soloway! My best to you. Rosie

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10 years 5 months ago #18337 by sarahlee
Thats my Dr,I'll go there. ;D I know your right

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10 years 5 months ago #18334 by Patricia
That would be a no-brainer for me....Miami definately. Heres one of the top docs in the blc world down there.........http://www.umiamihospital.com/PhysRefProfile.asp?guidPhysicianID={4AADCF9F-3868-11D5-81FF-00508B116BA6}
You don't get a lot of chances to do this right.
Your nurse is tired huh?............great answer...love the compassion.
Pat

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10 years 5 months ago #18333 by sarahlee
Thanks Pat, Heres what I ve got first uro refered me to a very good DR in Miami because he thought my bladder needed to come out . The second Dr in Miami says his pathology is a T1 high grade,no need to remove the bladder at this time, and wanted me to have six weeks Bcg, he said I could get the BCG close to home as Miami is a couple hours from my home,but he wants to look in the bladder in Aug. well the Dr #1 says oh no if he gives the BCG he is the one to look, after the way Dr#1 has handled this simple job,no urine check , never any questions about any side effects and when I told his nurse Ive been very tired she told me SHE WAS TIRED TOO ::) I want to use the more experienced Dr,in Miami, I have an appointment , I think he has a better eye for whats going on .I do want to go to Miami what do you think?

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10 years 5 months ago #18327 by Patricia
One would think so....??...However if you read Yosarians post one of his nurses actually decided to mix the BCG mixture in his bladder...in went the BCG and then the saline...i'm surprised he has a bladder left. All this is very specialized and you really have to be up to speed on your treatment and make sure everyone else is...unfortunately! There are over l00,000 mistakes made a year in hospitals with drugs alone......thats enough proof for me to be my own advocate or if i'm doped up enough not to be to make sure i have someone there who is knowledgable.
Pat

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