Thanks to all of you for your replies.
Regarding the calcifications, they are not free floating in my bladder, they are embedded in the wall (which is unusual). The last two surgeries I had they removed the calcifications from my bladder wall. Not to be graphic, but, the majority of the time the inside of my penis feels hard. After I urinate it relives this "hardness" but only for a very short period of time. The blood in my urine with clots of blood continues even though surgery was 4 weeks ago. I also have pain that radiates from my bladder to what I can only describe as my "ureters"...like a nerve pain...even radiates down to my thigh..an achy pain.
I have been told in the past that it could possibly be a rare mitomycin reaction but no one knows for sure. I am going to the urologist on Tues and will be asking about the parasite and TB.
I would like to contact Dr. Schoenberg but I am insured only through the VA at this time. I am unable to work/obtain private insurance. Wendy, has Dr. Schoenberg seen any treatments that might work for the mitomicin reaction?
Thanks again for all your answers. I look forward to hearing from you....I do not have internet access where I live right now but will be checking back in soon.