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Second Opinion

11 years 5 months ago #16596 by momof4
I am so happy that you are going for a second opinion!!Good Work! Great Choice as well. Get the date of when you should be finished with your treatment, ask them how long after treatment they want you to wait...Then set up the appt.

Good Luck to you,
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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11 years 5 months ago #16595 by Nix
Slabman,
Just as Dan said, they will do a cystoscopy. None of the doctors want to do a cystoscopy during bcg. I went for my second opinion (to Barnes St Louis) right after my doctor did a cysto after my frist 6 wks of BCG. Then I felt four eyes are better than two!
Good luck
Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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11 years 5 months ago #16545 by dmartin12358
It also makes sense to me to wait until you finish your first round of BCG treatments. At that time MD Anderson will likely want to do a cystoscopy when you visit (to see for themselves what your bladder looks like). At least that is what they did for me when I went for my 2nd opinion there - they asked me to coordinate my visits there with my local series of BCG treatments in California.

Dan


Dx 7/04, CIS + T1G3, Age 50
2 TURBTs
12 BCGs
Cystectomy 8/05 USC/Norris
So far, so good (kow)

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11 years 5 months ago #16461 by Rosemary
Slab,

I was confused for a minute, but now I think I get it. It's the timing that is the issue. If you had asked for the 2nd opinion BEFORE beginning treatment, I bet they would have taken you. You don't want to back the horse out in the middle of the stream....

I had my 2nd opinion at the University of NC BEFORE my treatment was even determined. Part of the value of the 2nd opinion was in getting validation for treatment protocol.


Best,
Ro

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 5 months ago #16453 by slabman
Today I called M D Anderson to enquire about going down for a second opinion. Surprisingly, I was told I should wait 'till my first round of BCG treatments was over before setting an appointment for seeing a doc down there. While I can understand one Doc not wanting to step on another's toes, I still wish to get the wheels moving on setting up that second opinion. Am I missing something? Or how can I get this moving sooner rather than later?

Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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