Many times lurking first post

Hi Pat, I believe the surgeon said he didn't take muscle. I remember being surprised and asking something along the lines of 'did you get the thing enough to do a pathology' and he said yes. Now I feel like I dreamt that.

I've always had muscle taken before. Well, no use in stressing about that--I'll find out soon enough.

I get the results on Friday. Thanks for the reply!

L.

L..well i hope he took some muscle as that is needed for a thorough pathology report...maybe he just was a bit gentler? Have you gotten the results back yet?
Pat

Thanks Lorie, I feel bad posting when I know folks are dealing now in the immediate with end of life issues. Like I said in my post---it's been a very lonely week so far. It was a week today I had my surgery.

Is your husband very grumpy after surgery or when he is sick? I don't suppose it is fair to ask if you resent him. I don't want to be a drain. My gf threw it in my face yesterday that I don't have family to run to. All I have is her. She is not much to lean on these days though....and so I'm left wanting to just dissapear. I can't figure out how to do this anymore.

I appreciate your kind words.

Hi there- You didn't give your name L, but hi- I'm Lorrie. My husband has BC- had the neobladder surgery last Oct. & has had no end of problems since & now it's spread to his lungs. I'm replying to your post because of what you said about family & support. Our famlies make noises like they are interested but really all they want to hear are good things & since we don't have any good things to tell them, we tend to isolate. It's very lonely. Bob, my husband, has never been a good communicator. So, I guess what I want to tell you is to come here to vent & ask questions & share what you are going through- if it wasn't for this site, I don't know what I would do. It really helps- so, welcome & come anytime- someone is always reading & posting & we will try to help. Best Regards, Lorrie

Hi all, I'm a 39 y.o. female--diagnosed 2-3 years ago with (initially)2 pap tumors non invasive. Clear for a year, now this last year 2 TURB Ts since September. Last Turb was followed by Mytomycin C (chemo). Felt okay. No bleeding this time which helps.

Normally it takes me around 3 weeks to be right after a TURBT. This time I think is better because I don't think they took any muscle & the chemo might have helped. I think the direction is going to be BCG now, which I don't like. Being sick sucks.

Having said that I know I am in the best case of a bad scenario. I'm writing because I don't know anyone else with BC--never even had a conversation about it. I don't have family support (my family is very hands off --i think they think I'm having warts removed or something). My tumors grow really fast...between cysto appointments. There was a new tumour growing between the time I left my TURBT & my follow up pathology appt. (I had a previous ultrasound appt where it was noticed).

Even though I feel lucky and I know that this time has been better than times before.... I've had the most lonely and trying and just all round hideous week. My family is nil (my sister did come by to tell me what a bad sister I am---I kicked her out of the house). My partner is good when we are in the hospital but once we get home we get into fights almost daily. Yesterday I found myself driving around just to get away from her yelling (she has a very stressful week this week). I am not well enough to drive yet (I get confused--I put three collars on the dog one day and walked into a door the next--just not quite on top of my game). The first 2 days out of hospital friends come by---then nothing. My partner is too busy and besides she really resents my being sick. She mocks me "yeah, I know, your sIIIIIIck....."

I'm devastated. I don't feel safe in my home. I feel sick and confused.

I'm sorry to be a downer here, but I don't know where else to vent. I hope I get better soon because this is lonely and very confusing.

L.