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BCG Treatment Aborted

10 years 8 months ago #15204 by sara.anne
Just had a call from Dr. Janoff. I do NOT have a bacterial infection. As I had wondered,
all this irritation is from the cancer. What causes it to flare and then be better and then
flare again is unknown. He consulted with a colleague who treats lots of it and she told
him that if there is not an unusual flare, she would go ahead and treat it. Said that sometimes
the BCG even makes it a bit better. Or not. So, if I am feeling semi-OK on Wednesday,
we will do it. I am really sick of this whole thing.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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10 years 8 months ago #15185 by sara.anne
Concerning the "depression" issue, I was not upset with either the urologist or my internist (who is also a personal friend.) It just sort of hit me wrong...I don't feel that we should treat everyone anytime they hit a bump in the road. Sometimes we have a right to feel down. I am a PhD pharmacologist and was on the faculty of the psychiatry department of the Univ. of Iowa many years ago. Have both suffered from depression and studied it. I will always remember one day when a psychiatry resident who was doing research with me came into my office and slumped into a chair. She was very upset. She said that she had just spent time with a depressed patient with all sorts of issues who was suicidal. And she said that the thing that upset her was that she agreed with him!!
BTW, I am feeling much better today, both physically and mentally. We WILL get this treatment going and we WILL get rid of this BC!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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10 years 8 months ago #15163 by Julie
I don't know what type of hospital your were at Susan but I can say after Dick and I were patients this past year in a teaching hospital that med students and residents have a lot to learn and we are their education. Your response was great because that Dr. asked a ridiculous question given your condition. However part of their job is to do an assessment and they would be neglectful if they ignored your mental state just as it would be neglectful to ignore person with depressions physical health. You want your medical care team to treat the whole person not just a symptom.

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10 years 8 months ago #15141 by wsilberstein

You raised an issue with which I can identify, sara.anne. When I was in the hospital with very heavy hematuria just before being diagnosed, a physician "doing
rounds" for my doctor saw that I'd said "yes" to a nurse who asked if I had
anxiety. (I think I said that anxiety seemed reasonable in my situation.)
He asked "Would you say, then, that anxiety is your major complaint?" I was
furious and said something like "No, doctor, it is the hemmorhaging that brought me here."

We all have anxiety. It's not a female thing, and I think for all of us it played a role in the decision to seek medical help as such a decision is never purely intellectual.
This somehow reminds me of the high-school gym teacher who chided me that I was afraid to be on the high bar. I answered, "No! I'm afraid of falling off."
After 7 years I haven't failed to be anxious about every encounter with my urologist.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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10 years 8 months ago #15113 by mssmr
You raised an issue with which I can identify, sara.anne. When I was in the hospital with very heavy hematuria just before being diagnosed, a physician "doing
rounds" for my doctor saw that I'd said "yes" to a nurse who asked if I had
anxiety. (I think I said that anxiety seemed reasonable in my situation.)
He asked "Would you say, then, that anxiety is your major complaint?" I was
furious and said something like "No, doctor, it is the hemmorhaging that brought me here." I'd be interested in a discussion with fellow warriors about incidents like
these. I think similar tendencies by doctors to see women as stressed, depressed,
anxious, and --yes -- hysterical lead to delayed diagnoses and can complicate
future treatment. Still, are there research results that show treating us for anxiety or depression may help -- even if there are reasons for our emotions?
I don't know if this should be a new topic under "women and cancer" or not?

I am sorry for your justified distress and wish you strength -- Susan

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10 years 8 months ago #15090 by gina
sara anne...so sorry for your delay...i can imagine this is pretty frustrating for you!...i just had my second bcg treatment and i know each time i get "ready" for it...i am just hoping to finish on schedule!!...whatever happens though...we just keep strong and positive...as pat points out...your doctor did what was best for you!! take care..gina

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