Follow up cystoscopy after resection - unknown object!

16 years 3 weeks ago #14806 by Rosemary
Dear Long,

When are you scheduled for day surgery???

"...may be a dilated ureter" doesn't sound at all like an "object". I'm confused.... :-\

Okay, it's hard to know whether or not to be scared yet. It may be NOTHING and it may be SOMETHING. We just don't know yet.

Come to think of it, why haven't these doctors done a 2nd TURB for residual tumor???? (It's recommended, you know.) My Doc did a Re-Turb 4 weeks after the 1st Turb, and guess what he found??? Residual tumor!!! There was tumor still in there!!

Also, at my last cysto, my Uro really frightened me (and he frightened himself) when he told me he couldn't find my left ureter!! He asked me had I had surgery on my left side and I said, "Yes, my ovary" and he said, "No. Not that." Anyway, the ureter finally opened up, IT HAD BEEN IN SPASM MODE, and all was well again.

He apologized for frightening me, and he told me that many Doctors would say that they had seen the orifice, when they hadn't seen it at all....(great)

Anyway, there's a point here....also, I'm thinking out loud....my point is this....don't get scared yet.....hold on, and try to get that appointment soon.

Best regards,
Rosemary



Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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16 years 3 weeks ago #14803 by longtallsally
I was diagnosed with superficial bladder cancer last November and had a resection in December. Went back last week for a follow up cystoscopy and a consultant I didn't know did the test, along with a student. After looking around for some time, he said out loud to the student "I don't know what that is!". After some more ferreting about with the scope, he released me and drew a circle to represent my bladder, and then a smaller circle indicating the thing he wasn't sure about. He said it may be a dilated ureter (I am 51 and female by the way) but he was going to check me in as a day patient, give me a general anasthetic and have another look. Instead of being completely reassured as I was after the surgery (they had got it all and it was non-invasive -hurrah!) I am now trying to avoid thinking about 'putting my affairs' in order again. I have a 12 year old son to raise (on my own) and I am very scared but I have to pretend that everything is okay. I have contacted my usual consultant's secretary and she says that my appointment for the hospital may not be until the end of April....! I'm trying to stay positive but my mother died of bowel cancer last August and the feeling of dread keeps overwhelming me. Any help/info from anyone out there would be useful.

Just to finish, I've researched a dilated ureter and I guess it's possible that I have an infection, although I have no symptoms. Should I make an appointment with my GP to be tested for it? I'm worried about relux/injury to my kidneys.

Arggh!!!

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