We are all scared, however with time you will learn to put your worries in their place and live in between the cystos. Just learn as much as you can, ask a lot of questions and get second, third and forth opinions - if need be. This forum has helped me so much, I am sure it will also help you.
Yes! Joe..I hope your procedure goes smoothly with a negative result!!...and thank you to all here for sharing their experiances! I am very new with all of this and honestly I hope for the strength heard from each of you!! Perhaps I am over reacting, but I continue to be very much afraid... :-\ I had my first of BCG treatments yesterday and while I became extremely tired a few hours afterwards, I felt that it went well. I am only expecting to have six treatments...I never thought I'd have MORE?!! Oh well, positive thoughts...denial for me...sigh...anyway..thanks again to all. gina
Gordo and Craig
I don't have much bleeding, just a drop - however my Uro told me not to take Ibuprofen, since it can cause bleeding. So since my dx I have used Tylenol. I do get a fever for a few hours, but other than that so far the only problem are the spasms. I guess so far I am lucky, I have one more maintanace to go thru next Mon.
I called my Uro and he suggested I try Detrol LA. So I take one pill a day during BCG. I don't know if it will work this time, since I am only taking it for 5 days before BCG. If it works I will let you know.
My spasms have very slowly progressed with the BCG - this last time they were more intense and lasted much longer. If this does not work, I am going to suggest a smaller dose of BCG
Thanks for the info,it is good to know we are not alone during all this treatment!
After my first three treatments, I still was unsure what bladder spasms were, or how I would know I was having them. The nurse told me that other's have described them as very strong and sometimes painful urges to urinate, at times to the point that if you do NOT use the toilet you may wet yourself. Based on that definition, I have had spasms (frequent strong but mostly painless urges to urinate), but they have yet to cause me enough trouble that I take action. So far, they last only for the remainder of the day following my treatment.
My practice has been to avoid food and water for a few hours prior to the treatment, then to tank up on water following the treatment. Other than feeling strong flu-like symptoms, my treatments have been bearable. From the sounds of it, I may have more challenges with my maintenance treatments...I will let you know.