I am so thankful to have found this forum! A couple hours after, I experianced severe fatigue and then somewhat of a headache and some eye symptoms that I can't really describe..but, "dry eye" could be it!!..I feel so much better knowing that I am not alone in this..thanks to those responsible for this site and to those willing to share their experiances to benifit others! Healing thoughts to all, gina
I just finished my fourth instillment, and again had minor side effects (a headache that was intense for a bit, but was gone after a good nap). I am in the home-stretch of my initial round, and am looking forward to a full week of work without interruption or working from home.
Glad to have you all with me; sorry it has been several days between posts.
I had my first round of BCG treatment (6 weeks) in 2000. I did not have another recurrence until 2007. I did not have any side effects at all from the BCG. I have not read that lack of symptoms/side effects may indicate ineffectiveness. At any rate, it wasn't true in my case.
Craig you are correct as being grateful for minimal symptoms. I have read many stories on this web site where people who have had minimal side effects have had positive results as to reocurrences. I just think the treatment effects everyone differently.
Guess I should have added this reply much earlier; better late than never.
Last week's instillment went very smoothly, with virtually no side effects other than a feverish feeling on the night of the treatment. Based on all I have read on the Web Cafe, and in the medical documents, I expected my second and third instillments to result in more intense symptoms. I have heard that a lack of symptoms may indicate ineffectiveness of the treatment, but I am assuming that I am receiving full doses (I plan to check on that tomorrow), so I guess I should just be thankful for low-grade symptoms.
Then again, there has been a lot of prayer on my behalf -- better to have FAITH than FRET.