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Mitomycin-C

10 years 11 months ago #12624 by drosenberg
Anne - thanks for your response. I am now feeling relatively normal, but I went through a rough couple of days. VERY frequent, strong urges, which caused trips to the bathroom every 15 to 20 minutes. The ditropan my doc prescribed seemed to be of little use. Basically very little sleep for about three days. Fortunately, I haven't experienced the other symptoms you describe.

I know what you mean about reluctance to drink, but I've been forcing myself to do so.

Don

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10 years 11 months ago #12621 by annec
Don
When I had Mitomycin, I found I had a burning sensation on passing water for a couple of days- there's a temptation not to drink too much, so you don't go to the loo too often and have pain, but that's totally the wrong thing to do- just sit it out and drink loads, and it'll be over quicker, in my experience.

I also had aching joints for a day or two after, particularly legs and arms, especially as the course went along and built up, and an awful chemical taste in my mouth, sometimes with small mouth ulcers. Sounds unpleasant, but was nothing too onerous that didn't pass- and it was worth it! A huge bar of good chocolate was very good at taking the bad taste away! ;)

Anne

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10 years 11 months ago #12506 by Rosemary
Don,

That scar tissue may explain a lot. I can totally empathize too. I live every day with the pain of adhesions from ovarian surgery over 20 years ago (My ovary is stuck to my rectum).

I think I know how you feel about that surgeon.

Take care and be good to yourself. Please keep us posted on how things are going.

Your Bud,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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10 years 11 months ago #12505 by drosenberg
Rosemary - your response is quite helpful & much appreciated. I'm definitely going to try the tea. Re: infection - I'm currently taking cipro, which my uro prescribed as a preventative measure. I think my symptoms are pretty much the result of the TURB procedure, not just because of "digging around" in the bladder, but also the fact that I have a lot of scar tissue in the vicinity of the prostate. Getting a cystoscope through that area is rather painful. That resulted from a botched TURP about 15 years ago. The urologist who did that is, of course, on my black list.

Don

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10 years 11 months ago #12502 by Rosemary
Don,

I haven't responded to this because I just don't have an answer.

After my TURB and Mito treatment my bleeding pretty much stopped after the first day. Of course, your equipment is different, so that may make a difference... :o

I am not a Doctor and don't want to make recommendations, but, one of the things that I did after surgery was to drink the healing type of herbal teas. I really flushed myself with herbal tea. I feel that I must have done something right because my bladder was looking really good by the next visit.

You might want to ask your local herbal advocate about advice on a tea.

Other than that, this is something to ask your Doctor. Of course, I just had a thought, that you might want to be wary of a possible infection.

Sorry I couldn't help more. Maybe someone else can be of more help.

Your bud,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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10 years 11 months ago #12488 by drosenberg
Just to follow up: I had my TURB 2 days ago. I had no apparent ill effects from the mitomycin following the procedure. However, I am now experiencing very frequent urination, burning at the end of the stream, and some slight bleeding. I don't know if these symptoms are the result of the TURB or the mitomycin treatment. After my previous two TURBs I wore a catheter for a week; this time no catheter. So, I'm not sure what after-effects are normal for me. BTW, my current discomfort is child's play in comparison to that d... catheter. >:(

Don

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