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Advice I received from the great Dr. lamn

10 years 11 months ago #12258 by michstate89
Sol,

I read one of your other posts and responded. It looks like you are getting good advice. Glad to see that you are seeking out as much info as possible.

My doctor has urged me to get a second opinion and has referred me to Dr. Lamm. I live in the southwest and I am fortunate that I don't have to travel too far.

Ross

Ross M
TaG1 March 06
Recurrence Jan 07
BCG Maintenance after 6 week treatment

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10 years 11 months ago #12247 by Gracie
Hi Joe,

I did not have extreme burning at all. All the other typical reactions took place and usually did not last for more then 2 or 3 days. But Joe, I also was at a reduced dose as the treatments went along. If I stayed at full dose I don't think I could have continued.

Best,
Gracie

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10 years 11 months ago #12212 by Joey
Gracie, how long did the BCG symptoms last for you? Did you have intense burning?

Joe

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10 years 11 months ago #12191 by Sol
Thanks Gracie, Hope to make it happen.

Sincerely,
Sol,

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10 years 11 months ago #12186 by Gracie
Sol - No two experiences are exactly alike - Dr. Lamm is a doctor and a researcher. He brings a completely different perspective to the table and BCG is his realm. He is a compassionate, kind person. You will enjoy meeting him.

Joe, do not dread the BCG. I welcomed it and regarded it as an elixir. I welcome the treatments because I felt I was actively fighting this damn thing. From everything I have heard - it is good to have some reaction. In the beginning I had nothing but the side effects became progressively more interesting. There is urgency, sometime an 'achy' feeling (like you have a flu but not as bad). I bet almost every person reacts somewhat differently. I ended up on reduced dose. You need to be your own advocate. I chose to consult with Dr. Lamm. Good luck. Your first step in taking your health back!

Rosemary - how interesting on the chicken! Wow - never heard that before. Any other pearls of wisdom for us??

Best,

Gracie






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10 years 11 months ago #12177 by Joey
Gracie did you have any side effects to the BCG? I start mine in 4 weeks. What did you do to reduce the side effects if you did have any?

Thanks Joe

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