Thanks for the information, But of coarse I am hoping for a diferant outcome. I really would like to avoid the removal of my bladder and prostate. Although I really dont have much use for latter now, Have two grown children and I have BPH of which makes the systos much worse, but I would like to avoid the issues that come neo comes with. But then again I would like to get rid of the threat of cancer there forever. I am praying and hoping you make the 2 year mark as, I am suporting all of you folks out there with cancer. I will keep ypu all that are interested posted as to the outcome on the 27 is when they will go in for the TURB. Don
I am going to try to keep this short but it is really a long story. I also had a blocked ureter by a tumor that was in my bladder. After 4 months of chemo before my surgery was scheduled my Dr. went in and did another TUR to make sure the tumor was still there. He got negative biopsies but the MRI still showed a 2cm growth in or near my bladder which was blocking my ureter. My surgeon mentioned a stent but never ended up putting one in, I just started chemo right away. Before my chemo the MRI showed a 4 cm growth. So the question was this growth that they were seeing on the MRI was it scar tissue or cancer? Since my biopsies where negative. My Dr. explained that he could of just missed the cancer cells when performing the TUR and that it could still be cancer. I ask him if there was a way he could biopsy the growth that they were seeing on the MRI. He said that they could try to go through my vagina and get a piece but it still wouldn't be 100%. I ask him if they could just watch the growth and see if it gets any bigger? He said that it would be too late at that point. So, I made the choice for them to go in and do the neobaladder and thank God I did. It was cancer.
Once they removed my bladder and did a total hysterectomy on me, my ureter opened back up. My Dr. said that hopefully that would happen and it did. All my margins were clean and I have been cancer free for 18 months. My oncologist which is at Sloan Kettering said that the statics drop at the 18 month mark post-op for reoccurences and at the 2 year mark it is up to 90%'s for no reoccurences so I am keeping my fingers crossed and praying.
My surgeon was Dr. Mark Schoenberg at Johns Hopkins which I would highly recommend. I hope I helped you. If you have any questions please don't hesitate to PM me.
Good Morning: The stint was put in at first TURB, But removed in the office very fast and hardly any discomfort. Very fast Doc said count to 30 he would be done I made to 20 it was over. With stint in there was some discomfort when I empty the cath bag, And for the week after that cath was out it hurt a little when I urinated. So bottom line stint is not a big deal in the scope of things. Good luck and hang in there to all of you fine people, what a humbleing experance for us all. Don
Did your Uro have to do another TURB a week later to remove the stent, or did he remove it in the office? (I'm not well informed as to stents, obviously) I may be having stents put in on 11/30, as I have a problem near my left ureter. Like you, I also had problems w/BCG and will be getting Mytomycin next time.