Hi Tanya,
I'm new to this site and I related to your message as my dad is on Keytruda at the moment (total of 11 doses so far). How is your husband doing?
My dad was diagnosed with stage 4 urothelial carcinoma in May 2016 (at 71 years old) and has been on Keytruda since June 2016. He was only on 100mg and only have it every 4-8 weeks as we need to fly to Malaysia for this treatment (dad lives in Indonesia). In September 2016, pet scan showed that the metastasis on the neck and chest lymph nodes have regressed. He has been doing reasonably okay with some side effects including hypothyroidism and skin rashes, then in October 2017 he had a week course of hypofractionated radiotherapy to relieve bleeding in urine. He continued having Keytruda in Dec 2017 and Feb 2018 then late Feb his bile duct got blocked and he turned yellow, despite normal liver function in early Feb! His liver function just went all over the place within 3 weeks. We flew to Malaysia and he had biliary stent put in. He seems to be doing not too bad now, not yellow anymore and no blood in urine also no pain. However, he has lost a bit of weight after the jaundice. So we are anxious to see what his pet scan shows in 2 weeks time. We are thinking to switch to Ipilimumab, both the oncologist in Malaysia and Singapore seem pessimistic, but fingers crossed!
Best wishes,
Mena