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reoccurance of TCC

2 years 2 months ago #53863 by Sean T
I hope everything is going good for you.

08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Jun 19, 2019 - cancer free!

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2 years 5 months ago #53169 by emstorm
I had a RC in 2010 following 6 BCG treatments. Had 6 months of gem/cisplatin chemo. Had a biopsy last week to determine that is was TCC on my vaginal wall and urethra - which was not removed. It was a bloddy mess but that has stopped now.

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2 years 5 months ago #53168 by sara.anne
I will be glad to offer encouragement...but you still don't know what you are facing. Have you had BCG? Was your original diagnosis low grade or high? Jack is correct, and until you get the results back from the pathology there is a lot unknown. It is so hard when uncertainty is there.

Will keep good thoughts for you! Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 5 months ago #53164 by emstorm
thanks Jack

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2 years 5 months ago #53163 by Jack R
Emstorm,

TCC has the nasty habit of coming back, sorry it has done so to you. You are being treated at one of the top tier placed for bladder cancer - I'm sure that is a comforting thought as you work through this.
It is always a happy occasion when we have a good checkup, and a disappointment when we have a setback. Hang in there and see what the doc has to say after the scan and workup. Waiting for answers is always the hardest part.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis

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2 years 5 months ago #53162 by emstorm
After a bloody episode, biopsy came back showing reoccurance of TCC. Next up is a PET scan then I don't know what. I am being treated by City of Hope. Any comments.words of support???

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