Organ donation with mets?

10 years 3 months ago #45695 by Markq
Replied by Markq on topic Organ donation with mets?
I'm inclined to agree with the others. The risk of passing your cancer to the recipient is probably unacceptable to any transplant program.

Before I got diagnosed I was up to about #5 gallons of blood donations. After I got my diagnosis I stopped giving. I was never actually turned down. I just guessed they wouldn't want my blood since I'm getting BCG and there is a small risk of acquiring an infection from the treatments. Maybe it's time to revisit that decision after my next maintaince cycle which starts in a few weeks.

Just thinking about helping other when you're faced with your diagnosis really says a lot about the type of person you are - which we already knew. Looking at other ways to help other may be an option you and your family may wish to consider when the time comes.

47 yo, Ta G3
Diagnosed 11-24-10
BCG induction starting 12/17/10 followed by BCG maintance.

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10 years 3 months ago #45694 by Rockyiss
Replied by Rockyiss on topic Organ donation with mets?
Mike , I was an organ doner for many years but when I got bladder cancer I had the donation taken off my drivers lic. A person that has a transplant takes drugs that surpress the immune system, if there is a trace of cancer I would be afraid it would take off like wildfire. But I also told him to donate anything they wanted for the research of bladder cancer since I have a brother and nephew that both had bc. Rocky

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10 years 3 months ago #45679 by CatherineH
Replied by CatherineH on topic Organ donation with mets?
Good morning, Mike... I knew you wouldn't be resting on your laurels but trying to think of anyone you can help. Organ donation is a wonderful gift but does not come without its risks as you undoubtedly have found some references to that effect.

Your question reminded me of a story I read a couple of years ago so I searched it out again. A man was given a kidney transplant, but within months had contracted uterine cancer that had metastasized from the woman's kidney. She did not know she had cancer at the time of her death. The link below covers that story, but also ABC news dug a bit deeper into the issue and talks about transplant and possible disease transmission risks. It will be interesting to see what your doctors have to say about the possibilities you raise as well.

Cancer From Kidney Transplant

Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
The following user(s) said Thank You: mmc

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10 years 3 months ago #45678 by mmc
Organ donation with mets? was created by mmc
Does anyone know of bladder cancer patients that died with mets but was still able to donate organs?

I'm seeing mixed messages in what I research so I am checking to see if anyone had a loved one do this.

I still have some time but my sister, who has the same blood type, has a bad ticker. This past year she got a defibrillator/pacemaker installed but she's going to need a transplant at some point.

Waiting on answer from my doc.
I read: No way if there is any active cancer and also YES, if the particular organ does not have cancer.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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