Got my scan results yesterday. After two all clear scans, I was not so fortunate on this one. Several new lymph nodes have problems. I had to drop out of clinical trial.
I go back in 6-8 weeks for another scan to see the rate of progression. Certainly was not the best way to start the year! They are all super tough to be able to biopsy so we won't bother.
Different kinds of chemo is an option as is a phase I study. That's the one not tried on humans yet.
Been through the chemo route already and I don't plan to do it again. Not sure if I want to mess with a phase 1. Likely, we will just be doing palliative treatment.
Lots to think about. Thanks for all the support for so long!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...