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Mum has Bladder cancer with Mets - from England

6 years 1 month ago #45341 by soha
Good to know so much useful information.

soha

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6 years 5 months ago #44723 by Rockyiss
Hi Emmie, I just read your post . I am sorry that this has come on you and your Mum and I hope you will be able to get the help she needs. I am from the u.s and don't know about your meds or medical system . Maybe there will be someone that comes on that can have the answers you need.
You and your Mum will be in my prayers. Rocky

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6 years 5 months ago #44633 by EmmieShepherd
Thanks so much for your kind replies.

The nausea still is not resolving and she has no energy, tomorrows appointment cannot come soon enough.....

It is a huge shock at how quick this is happening and she is deterioating :(

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6 years 5 months ago - 6 years 5 months ago #44632 by CatherineH
Hello Emmie... I am so sorry to hear of your dear Mums diagnosis. What a shock it must be to you both to get such devastating news and all her difficulties with the surgery and followup in such a short time. I wish I had some helpful advice but I have not had experience with this level of care. I do send my most positive thoughts to you that her medical team can find a way to give her some relief from the nausea and pain.

My thoughts are with you both...
Catherine

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 5 months ago #44631 by Flamenco.
Hi Emmie,
Welcome to the site- So sorry to hear about your mum, it is such a shock when something like this comes out of the blue. I know others will post with more advice than I can give you, but I am on European time, so am probably the first to read it. My dad , who lived in the UK , had metastatic cancer, and we were put in touch with a Macmillan nurse- if you can speak with them, I would highly recommend you to - they are totally committed to help cancer patients and their families, and as this is their speciality, they are usually more informed on how to deal with problems, such as for example nausea, than your GP. I think if you go on their website, you can actually call and speak to one of them, or be put in touch with one in your area. I don·t know what is causing the nausea, but it may be connected to the medication Mum is on.
Thinking of you both, Diane

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6 years 5 months ago #44630 by EmmieShepherd
just wanted to ask some advice and post with mine and my Mums story.

3 weeks ago my Mum had an ultrasound scan which showed there was a large tumour on her bladder.

They called her into hospital with the aim of a resect. When they went in they only managed to debulk the tumour due to how extensive it is and when they looked they thought there was a vaginal and suspect lymph nodes. My mum then went into acute renal failure and they put in nephrostomy tubes with a view to stent. They did a CT scan without contrast because of her kidneys and found bone mets. They could not see any of her organs as she is so thin (weighs 6 stone) They are going to do an MRI scan as an outpatient , but we have not recieved that appointment yet.

Anyway, I managed to get Mum home on Saturday after two weeks in hospital and she had some slight nausea but it was manageable, she has been on Nutritia drinks and managing kind of OK.

Today the sickness has been overwhelming and she looks and sounds terrible, I called her GP who came out and prescibed antiemetic and some diarolyte (sp) as she is mildly dehydrated despite anti sickness medication this does not seem to be resolving and she is extremely tired, sleepy and nausea.

I guess I wanted to share my story but also if anyone has any advice, is this level of nausea to be expected at end stage cancer

This is a huge shock as 3 weeks ago everything was so different. And now here we are facing the end.

Support and advice would be appreciated.

Emmie xx

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