Forum

× click new topic to start your post

Getting into MD Anderson

7 years 7 months ago #41159 by quinlanm
Thanks Cynthia!

Please Log in or Create an account to join the conversation.

7 years 7 months ago #41148 by Cynthia
Quin, Many times the entry criterium for clinical trials is that they not have had treatment in so long before the enter the trial. A clinical trial can be very rigid they vary but they want to make sure that there results are valid and not because of prior treatment.

Also most doctors do not take on a new patient that is in the middle of treatment, they don't want people stopping treatment just to change doctors if it is the best treatment.

I would call and ask MDA how long after ending this chemo regime will they make an appointment for a second opinion for you, that will at least give you an idea of if it would be doable.

Remember we are here for you we might not have all the answers but we will always listen.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

Please Log in or Create an account to join the conversation.

7 years 7 months ago #41141 by quinlanm
Hehas not paticipated in any clinical trials. He has only had MVAC for the last 6 months. No radiation. No surgery. Only the standard treatment. MVAC

Please Log in or Create an account to join the conversation.

7 years 7 months ago - 7 years 7 months ago #41133 by mmc
I bet I'd probably be trying and hoping for the same thing. I think if he is one clinical trial it rules him out of other clinical trials but I'm no expert on any of that stuff.

I absolutely agree with the best care possible. I guess my question around prognosis is really to determine if it is time to focus on just keeping the pain away or not. I hope it doesn't sound cold coming through in writing because that is not the way I intend it at all and if we were talking face to face you would certainly feel the empathy come through. When someone we love deeply is going through something like this it is really hard on everyone.

I hope for everything to be the best that it can be for you and your husband. I have no words of wisdom that can help and I'm sorry for that.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

7 years 7 months ago #41131 by quinlanm
Looking for a miracle? Southwestern has a Phase I clinical trial. Prognosis isn't really discussed with current oncologist. I've seen that MD Anderson has several clinical trials, phase II & III. I would just like the opportunity to have the best care and options for my husband. Maybe we already have that & I'm grasping for that miracle. Anyway, I guess it's not Anyone's fault that the cancer doesn't give him a break.

Please Log in or Create an account to join the conversation.

7 years 7 months ago #41130 by mmc
Did Southwestern or his oncologist give any sort of a prognosis? It certainly sounds pretty bad if being off chemo for that short of a time causes pain of such significance. It sounds like managing the pain is the primary thing at this point (based solely on your post).

What expectation do you have of MD Anderson that you think Southwestern didn't do? What did they say at Southwestern?

Sorry to hear how things have progressed.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 1498 Guests 
Regor's AvatarRegor

Legend: Site Administrator Global Moderator User Banned

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: LouB
Yesterday Total Opened: 0 Yesterday Total Answered: 0
Total Posts: 52795 Total Subjects: 6870 Total Users: 8448
Powered by Kunena Forum