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Just wanted to say Hi

8 years 9 months ago #38772 by Dana
What you wrote Cynthia about Dr Karen Green really gave me a lot of hope. The doctor said he has a 50/50 chance of being cured and to begin with I only saw the negative side, lately I have been thinking why shouldn't we be in the 50% that gets cured.
I know for a fact that the cancer was caught early (but it was aggresive, that scares me the most) and that it hasn't spread out of the pelvic region.
I don't know if anyone can help me with one question that has been on my mind. The doctor said that lymph node cancer at such and early stage can't be detected easily. He told us that after the chemo we have some tests but no tests show exactly if the cancer has spread, we have to wait 3 months. Is this so? Maybe I didn't understand correctly, I will be asking him again.

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8 years 9 months ago #38770 by Cynthia

This forum isn't only about information it is about support and community. I hope you know that we are here to listen and we may not know the answers or exactly how you feel but we do care. Sometimes just having someone to talk to is a major thing. Do not give up hope one of our board members Dr. Karen Green is ten years out from Stage4 with lymphnode involvment. I have personally been to chemo infusion 20 times and I can tell you it was a hard part of my life. But it passed and life does go back to normal once you are through it but at the time it was the center of the world. The hair will grow back quicker than the normalicy will return but return it does in many cases. Again we are here for you.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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8 years 9 months ago #38769 by mmc

It is still bladder cancer even though it spread to the lymph nodes. Thanks for keeping us posted and hopefully the chemo will do the trick.

We're all pulling for both of you!


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 9 months ago #38768 by Dana
I haven't been on the site for quite a few weeks,(been really busy running around to hospitals lately). Most of the regulars know my situation so no point in going over it again.
As my husband's cancer is no longer only in the bladder but in the lymph nodes I saw no reason to continue on the bladder cancer society, yet having looked all over the internet I really don't feel the need to join anaother forum. From day one I got a lot of practical help from everyone on the forum as well as a lot of hope and kind words, that helped me a lot through the difficult times.
My husband is having his third chemo next week and he's quite well considering everything he has been through. He feels a little tired the first few days but then just continues on working, his hair falling out was a major issue but now he has gotten over that as well.
I am just hoping for the best and am trying to keep a positive attitude (take each day as it comes).

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