I have been giving updates on dad since last year. I cannot tell you how disappointed and frustrated I am. Not to mention, heart broken. My dad had a cystecomy last year, I wish his surgeon would of removed his bladder 9 months ago, after the cystecomy. He was healthy, strong and in good spirits! Not to mention the man is ONLY 55 years old!!! No, they said to do chemotherapy first before surgery. After the cystecomy, a petscan was done and showed 1 or 2 lymph nodes involved. Now that I look back, we should of insisted radition therapy be done along with his chemo. We didnt know, we just listened to the Oncologist who in my opinion is a heartless human being who only cares about the size of her check she will be taking home and not the well being of the patient. She said "NO" radiation when I asked her back in January. The first round of chemo didnt reduce the tumor and now more lymph nodes were involved!! You would think at that time they would say lets start radition!! NOPE!!! lets give him another chemo!! That chemo didnt work either and the doctor says No to surgery "It wont be succesful!, Sorry go seek other opinions"
We went last month and seeked other opinions - Mayo said he should of received radiation. But now he is too weak for it. So no one offers any solutions, just bring your father home and call hospice!
I cannot belive my father is in this situation, the poor man - only 55 years old. He is the life of the party, loves to sing karaoke, loves life....why is this happening??
Now, sadly to say he barely has the strength to walk, his voice is a low whisper, he cannot eat or drink as it makes him sick. He looks like a prisoner of war, down to 100 lbs. It just kills me inside. He looks at you with fear in his eyes, he just wants to be able to laugh with us like he used to.
I just feel like if these Doctors did what they should of 9 months ago, we wouldnt be in the situation we are in today. It is so sad. Not only has he had the worst 6 months of pain, suffering, catheters, blood clots, bleeding, chemotherapy, hospitals, sickness, infections, needles, hair loss, weight loss, the humiliation of not looking like yourself, not being able to even enjoy your last 6 months with your family. It just isnt fair. There are so many questions, that I guess can never be answered and I just hope and pray that he is at peace soon. No one should have to go through this and my heart aches for anyone having to live with this disease.
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