Mel,
There are times when words cannot express all we wish to say or how much we wish we could make something better or easier, this is one of those times for me. When I became involved with bladder cancer advocacy I knew why I was doing as a survivor. What this forum has taught me is that bladder cancer does not only cause pain to the one with it but to anyone that loves them. To be dealing with such intense joy and sorrow at the same time has to be truly walking though the fire. Please remember the journey though anything is done the same way...one step at time and it is made easier if you are as kind to yourself as possible.
The Native Americans saw each child as a thing of hope a part of the circle of nature. Through each generation flows we hope the best of us. And with each new life the hope of one of them achieving what we could not in our lifetime, maybe even the cure to cancer exists. That little spark of hope you are carrying under your heart will bring joy at a time it is so badly needed, a blessing when one is so deserved.
Has your family talked to Hospice yet? What many do not understand is that if your father were to improve you could discontinue them. But they are trained to help with pain management and have many tools in their pain management box. They are all about quality of life and understand the stress the family is going through. I have had good experience in my family with them they helped us advocate for our loved ones. Not all hospices work the same you might want to talk to more than one if your area is big enough to have a choice.
Please keep us updated and know that you are in my heart and mind.
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