Back from UK

14 years 4 months ago #29115 by Webs
Replied by Webs on topic Back from UK
Leigh sending you all the positive energy I can. Today will go well. ((Hugs))

Char

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14 years 4 months ago #29112 by Leigh
Replied by Leigh on topic Back from UK
Many thanks for your kind words of support...

Heading to Gent in Belgium for Ct scans of torso in a few hours. Just an 1/2 hour drive from were I live on the Dutch border.

Later the same day meeting up with Oncologist and Neuro oncology surgeon to discuss plan of action.

Not slept a wink so will definately sleep well tonight.

Thanks again for your well wishes and will update as soon as possible.

xxxleigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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14 years 4 months ago #29111 by DougG
Replied by DougG on topic Back from UK
Prayers and positive thoughts are with you, Leigh.

Anita & Doug

Anita
Forum Moderator
Caregiver

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14 years 4 months ago #29107 by SandyMc
Replied by SandyMc on topic Back from UK
Dear Leigh,

The MRI report is daunting but I know you will battle this just as you have the bladder cancer. Your tenacity, faith in the outcome and marvelous ability to maintain a great attitude will help you weather this newest development. Please know I am thinking of you!

Take good care!
Sandy

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14 years 4 months ago #29103 by mmc
Replied by mmc on topic Back from UK
Leigh,

So sorry to hear about all of this. Like bladder cancer isn't enough.

It looks like the high grade glioma means it is primary brain cancer (not mets from somewhere else).

Most likely, more surgery, radiation and/or chemo to get rid of it.

Hope you are able to get this fixed and behind you!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 4 months ago #29101 by Leigh
Replied by Leigh on topic Back from UK
Here below a copy of the report from MRI....

I have been unable to research anything as yet...any thoughts wisdom...on below....

I have been told it can come out which is positive right!!


Report; MRI BRAIN, MRI BRAIN WITH CONTRAST

MRI Brain - axial T1 W SE pre and post gadolinium, T2 W TSE: sagittal T1 W SE: coronal T1 W SE post gadolinium: axial FLAIR.

There is a mass in the superior aspect of the vermis returning a low signal intensity on T1 with a central area of high signal intensity representing haemorrhage.

On T2 - Weighting the mass has inhomogeneous high attenuation pattern with surrounding cytotoxic oedema. On the post contrast study, there is inhomogeneous enhancement of the lesion, delineating a centre that is necrotic.

There is a mass effect, compressing the inferior aspect of the aqueduc and causing dilation of the third, temporal horns of both lateral ventricles including the lateral ventricles.

The rest of the cerebral hemispheres including cerebellum are otherwise normal.

Conclusions:

Superior vermis tumour with inhomogeneous enhancement pattern, causing compression of the inferior aspect of the aqaeduct, with associative obstructive hydrocephalous, most probably representing a high grade glioma.

Referral for neurosurgical opinion advised....

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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