Devastated as my cancer spreads to bones..........

15 years 3 months ago #23348 by Julie
Maria, I am sorry that the Bladder Cancer has spread to your bones. I can only imagine how painful it is for you. I hope the Radiation will give you some relief. I also suggest you see a pain specialist as they have some other methods in addition to narcotics to help reduce pain. Don't hesitate to ask for help if you feel nausea/lack of appetite from the Radiation therapy. {{{{Hugs}}}} Julie

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15 years 3 months ago #23346 by Maria
About 6 weeks ago I thought I was experiencing a very severe Rheumatoid Arthritis flare, to the point I needed to see a rheumatologist on an urgent basis, knowing he would prescribe steroids and pain relief.
After about a week the inflamation settled in all my joints except the hip area.
For a further 3 weeks the pain in my hip bone area continued to worsen to the point where I was taking pain killers every 4 hours i could not get any pain relief and very little sleep.
Eventually, last Wednesday I had hip and lower back x-rays, i was told due to the holidays the results could be delayed by 4-5 days.
The following evening I ended up in the ER I knew this was not arthritic pain, cancer never occurred to me, even then!

A ct scan was arranged and the ER doc told me the 'cancer had eaten portions of my bone, hence the severity of the pain'
I was admitted to MDAnderson, will start radiation for the pain relief and continue on an outpatient basis for about 8-19 sessions.

I am in state of shock and devastated and i just never expected this, I am angry, crying, very scared and confused. I know my life expectancy decreases with this new dx

Thanks for listening, hospitals are cold places under these circumstances.
SORRY for the ramblings on, I have been on huge amount of steroids (stopped today)I feel they have made me a little bit unhinged ................ got to laugh and I can do that on here, with my cancer family!
take care Maria xx

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